Spring European Testing Week: 17-24 May 2019

Hepatits&Liver – debunking some myths On the occasion of World Hepatitis Day 2024, ELPA released the new video series Hepatits&Liver – debunking some myths. In the framework of the IP-cure-B EU-funded project, ELPA, as a partner responsible for communication and dissemination, collaborated with the Principal Investigator to publish short videos debunking some common myths about hepatitis

Paris MASH Meeting 2024 Several representatives from the European Liver Patients' Association (ELPA) participated in the Paris NASH Meeting, which took place on September 5 and 6, 2024. At this highly anticipated event, focused on MASH and liver health, ELPA presented a poster on the success of the European Liver Screening Week 2023. The poster

EUCAPA training on HTA ELPA President Marko Korenjak and ELPA Head of Office Beatrice Credi have actively participated in the EUCAPA (European Capacity Building for Patients) training. The training focused on the EU Health Technology Assessment (HTA) new Regulation, furthering their commitment to enhancing advocacy skills and broadening their impact within the European landscape. Their

ELPA High-Level Policy Event on Liver Cancer On November 20, 2024, the European Liver Patients’ Association (ELPA) convened a high-level policy meeting in Brussels, focusing on the prevention, early detection, and treatment of liver cancer. This significant event, in collaboration with newly elected Members of the European Parliament (MEPs), aimed to modernise EU healthcare policies

HL4EU Community Building Conference Advancing Healthier Lifestyles Across Europe On November 5, 2024, the Healthy Lifestyles for Europe (HL4EU) Community Building Conference – Advancing Healthier Lifestyles Across Europe took place in Brussels. The successful conference brought together policymakers, industry leaders, and project partners to promote cross-sector collaboration for healthier lifestyles across Europe, underscoring the project’s

ELPA training ELPA members participated in a highly impactful training session in Lisbon, where they engaged with representatives from Bayer and completed advanced clinical trial training focused on steatotic liver diseases (SLD). The event underscored the critical role of patient engagement in drug development and clinical research. The presentation by Bayer provided valuable insights into the

ELPA Extraordinary General Meeting The European Liver Patients’ Association (ELPA) convened its Extraordinary General Meeting (EGM) on November 28, 2024, with members joining in-person in Lisbon. This critical gathering set the stage for a year of impactful advocacy and action. One of the highlights of the meeting was the introduction of new ELPA members, who

Bridging the Gap: Collaborative Efforts on Liver Health, Obesity, and Diabetes The European Liver Patients’ Association (ELPA) successfully organised the landmark event, ‘Bridging the Gap: Collaborative Efforts on Liver Health, Obesity, and Diabetes.’ With the collaboration of the European Coalition for People Living with Obesity (ECPO) and the International Diabetes Federation (IDF) – Europe, The

EUPATI Patient Expert Training Programme Two ELPA members proudly graduated as EUPATI Fellows during the second in-person event of the Expert Training Programme Cohort 7 on October 21-24, 2024. During the training, before graduation, ELPA President Marko Korenjak gave a presentation on Patient Involvement at European Regulatory Agencies. The EUPATI Patient Expert Training Programme is

European Liver Screening Week 2024 The European Liver Screening Week 2024, held from September 30 to October 4, 2024, marked a significant step forward in raising awareness about liver health across Europe. Organised by the European Liver Patients' Association (ELPA) together with ELPA members from France (SOS hepatites) and the UK (Liver4Life), under the Patronage

The high-level roundtable. Steatotic (Fatty) Liver Disease – Strategies for Early Detection and Intervention On June 13, 2024, Global Fatty Liver Day, ELPA organised a high-level roundtable to discuss Fatty Liver from different perspectives. The meeting started with a welcome speech and greetings by Marko Korenjak, ELPA President. This was followed by two medical presentations

ELPA Annual General Meeting 2024 and new members The European Liver Patient Association (ELPA) held its Annual General Meeting, a pivotal event that every year brings together ELPA members from across Europe and beyond.  This meeting serves as a platform for members to discuss advancements in liver disease research, patient care, and advocacy strategies. Attendees

ELPA educational training and training on patient engagement ELPA's stay in Milan during the EASL Congress also enabled all ELPA members to participate in many training sessions organised by ELPA. The first session hosted some Genfit representatives presenting their pipeline on acute-on-chronic liver failure (ACLF). ACLF presents as a syndrome defined by a combination of

EASL Congress 2024 The European Liver Patient Association (ELPA) attended the EASL Congress 2024 with a full contingent of its members, continuing its tradition of active participation. As in previous years, from June 5 to 8, 2024, ELPA's robust delegation underscored its commitment to representing liver patients' interests and contributing to the hepatology field. Throughout

SLD Clinical Trials Programme The 3rd and last edition of the ELPA SLD Clinical Trials training kicked off in Milan in June 2024. The last cohort of ELPA members, composed of 8 participants from 7 countries, successfully started the programme. The training focused on equipping participants with advanced knowledge and practical skills essential for understanding

ELPA layperson events @EASL Congress During the EASL Congress in Milan in June 2024, ELPA organised three layperson events dedicated to EU-funded medical projects in which ELPA is a partner. The first event focused on GRIPonMASH, a project aiming to develop innovative screening strategies for managing metabolic-associated steatohepatitis (MASH). Participants learned about how the project

ESPGHAN 2024 The European Liver Patients' Association (ELPA) participated in the 2024 annual meeting of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN). This involvement, which had its maximum expression in the symposium organised by ELPA around the topic of transplantation, underscored ELPA's commitment to fostering collaboration and advancing research in liver diseases,

ECO 2024 Some ELPA representatives attended the European Congress on Obesity between May 12 and 15, 2024. They benefitted from an innovative and interactive program covering many facets of obesity. The program was designed to be engaging and to promote interaction and discussion around the hottest topics in the field of obesity. Programme topics were

ELPA @ the University of Pavia ELPA President, Directors and staff were invited by Prof Serena Barello to share ELPA's experience in patient advocacy at the University of Pavia. They met with the students during a Health Psychology class within the Master’s degree in Psychology, Neuroscience, and Human Sciences. This program, newly established by the

International Patient Advocacy Management Master’s graduation On May 10, 2024, ELPA President Marko Korenjak, ELPA Director Milan Mishkovikj and ELPA Head of Office Beatrice Credi graduated with a master's degree in International Patient Advocacy Management. The course provided the student with the management skills required for the successful coordination and development of the activities of

"Made with Patients" Awards 2024 Rising Star ELPA President Marko Korenjak

European elections, June 6-9, 2024 The European elections are approaching, and we call for a Europe where patient voices are heard in a loud and clear way. To invite ELPA friends to participate in the next European elections, the ELPA President recorded a video from the European Parliament to remind the importance of casting a

Paris Hepatology Conference 2024 On March 18 and 19, 2024, our patient organisation had the honour of participating in the Paris Hepatology Meeting, a prestigious event bringing together experts and stakeholders in liver health worldwide. ELPA proudly presented a poster showcasing the results of the ELPA European Screening Week held in Brussels in October 2023.

New Project LIVERAIM The kick-off meeting of a new project of which ELPA is part took place in Barcelona on March 21 and 22, 2024. Liver cirrhosis and liver cancer are common and responsible for high morbidity, impaired quality of life, and significant costs for healthcare systems, causing 300K deaths per year in Europe. Predominant

New Project Healthy Lifestyle for Europe  The Healthy Lifestyles for Europe project (HL4EU) will foster a cross-sectoral approach to healthy lifestyles promotion among a variety of stakeholders.  The project is in line with the European Commission and WHO’s vision and existing policy initiatives and in sight of tackling the increasing burden of NCDs and of reducing health

New Project ARTEMIs  The ARTEMIs project aims to consolidate existing computational mechanistic and machine-learning models at different scales to deliver ‘virtual twins’ embedded in a clinical decision support system (CDSS). The CDSS will provide clinically meaningful information to clinicians for a more personalised management of the whole spectrum of Metabolic Associated Fatty Liver Disease (MAFLD).

High-level policy meeting. Improving Prevention in the EP new mandate agenda. The case of liver cancer On February 20, 2024, ELPA hosted a roundtable on liver cancer.  Invited speakers were: -Marco Greco, President of the European Patients Forum (EPF) -Alessandro Gallina, Policy Manager, European Public Health Alliance (EPHA) -Richard Price, Head of Policy, Silvia Romeo,

Europe’s Beating Cancer Plan: Joining Forces On January 31, 2024, ELPA President Marko Korenjak and ELPA Director Milan Mishkovikj attended the ‘Europe’s Beating Cancer Plan: Joining Forces’ event.It was organised by the European Commission to celebrate World Cancer Day. It’s been three years since the adoption of Europe’s Beating Cancer Plan. Stella Kyriakides, European Commissioner

New Project LEOPARD Liver transplantation (LT) is a life-saving procedure for decompensated cirrhosis (DC) and hepato-cellular carcinoma (HCC).Its efficacy is hampered by the risk of death/drop-out on the Wait List (WL). This risk is driven by organ shortage and is mitigated by organ offering schemes. According to a sickest first policy, offering schemes prioritise LT

New Project THRIVE The European Union’s THRIVE project (Tumour host interactions in liver cancer for childhood and adults) held its kick-off meeting on January 12, 2024.Thirty-five people, including ELPA representatives, attended the meeting, which took place in the Esteve Auditorium of the Esther Koplowitz Centre, where IDIBAPS’ headquarters are located. Liver cancer is a major

ELPA meetings in Malta ELPA members gathered in Malta for their annual meeting from November 15 to 19, 2023. Hosted by the Malta Health Network and its chairperson, Gertrude Buttigieg, they had the honour of meeting with the President of Malta, His Excellency Dr George Vella, and the Minister for Active Aging, Hon. Dr Jo

ELPA SLD Clinical Trials Programme 2023 - second part In November 2023, the second edition of the ELPA SLD Clinical Trials Programme came to an end, and eight representatives of ELPA members successfully finished the training. The second part was held in Malta, and like the first edition, some lectures of the second module focused

Liveration and Genial layman events On November 21, 2023, ELPA, together with its scientific partners, organised two layman events in the framework of Liveration and Genial, EU-funded projects focusing on liver cancer.  The two sessions aimed at explaining the scopes of the two projects to all ELPA members. Liveration: Colorectal cancer (CRC) ranks fourth in

European Liver Screening Week For 3 entire days, October 10-12, 2023, ELPA had a van in front of the European Parliament where it was possible to have the liver screened for free with a fast and non-invasive test. This was also the occasion to raise awareness of liver health because early detection is crucial in

Catalysing Change: Elevating Liver Health on the European Public Health Policy Agenda ELPA organised a high-level policy event hosted by MEP Tomislav Sokol on October 12, 2023, in the European Parliament. The event brought together experts, policymakers, patients, and other stakeholders active in the field of liver cancer to explore what we can all do

LIVERATION, A NEW PROJECT! ELPA is part of the new medical, scientific project LIVERATION, (Unravelling the impact of Radiofrequency in liver surgery: the key to decrease local recurrence). Colorectal cancer (CRC) ranks fourth in cancer deaths worldwide. Between 20% and 30% of patients with advanced CRC have liver metastases (CRLM). Liver cancer ranks second in

On June 9, 2023, International NASH Day, ELPA organised a high-level event in the European Parliament to discuss Fatty Liver from different perspectives and to present a Manifesto and a Call to Action.The meeting started with a welcome speech and greetings by Mr Marko Korenjak, ELPA President, followed by the Member of the European Parliament,

As every year, during the EASL Congress, ELPA convened its Annual General Meeting.  On June 21, 2023, ELPA members all gathered for this special occasion, voted on the Annual and Financial Reports 2022 but also had the possibility to share good practices and talk about the work done so far. On the same day, in

As every year ELPA, together with all its members, participates in the EASL Congress. This year the meeting was organised in Vienna on June 21-24, 2023.9,000 clinicians, researchers, scientists, trainees and postdocs, nurses, allied health professionals, patient representatives, and healthcare industry professionals interacted and expanded opportunities to share research and to network with the global

Jointly organised by PFMD, EUPATI, and EPF, PEOF is an event during which participants explore patient engagement working in a multi-stakeholder context. PEOF is composed of virtual sessions on critical topics throughout the year, and a special spring edition of a face-to-face event was held on June 13-15, 2023. ELPA Director Milan Mishkovikj participated in

Taking place on June 1 and 2, 2023, the meeting aimed at building meaningful collaborations among industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. The ultimate goal was to gain practical strategies and best practices on challenges, innovations, technologies, and concepts. ELPA Vice President Ivana Dragojević was among the speakers and

The ELPA@home Turkey – LAL-D took place in Istanbul on June 1 and 2, 2023. Organised by ELPA in synergy with its Turkish member HEPYAŞAM, the meeting aimed at learning about the situation of LAL-D in Turkey to look for ways to find patients. Participants heard from physicians, Gastro paediatric doctors, GPs, Hepatologists, Mr Eduardo

Hosted by the Slovak Medical University SMU, the second part of the ELPA special program on NASH clinical trials took place on May 12 and 13, 2023, in Bratislava. Lectures focused on pharmacology, and more specifically on the particular conditions for NASH Clinical Trials and patients/patient organisations, deepening the discussion specifically on biopsies, biomarkers, Quality

ELPA President Marko Korenjak participated in a round table discussion organised by INFARMED in Porto on May 30, 2023. INFARMED is a Portuguese Government agency accountable to the Health Ministry that evaluates, authorises, regulates and controls human medicines as well as health products, namely, medical devices and cosmetics, for the protection of Public Health. The

ELPA President Marko Korenjak participated in the 11th Congress of the North Macedonia Society of Gastroenterology and Hepatology, bringing a unique perspective and valuable insights to the discussions from the liver patients’ point of view. He presented the impact Europe’s Beating Cancer Plan has on the EU and North Macedonia on May 26, 2022. The

ELPA attended the Global Patient Partnership Summit 2023 in Vienna to Discuss Patient Engagement on May 22 – 24, 2023. The summit aimed at exploring the crucial role of patients in their relationships with stakeholders within the healthcare industry. The event witnessed the presence of various influential organisations representing a wide range of health conditions,

ELPA representatives attended the ESPGHAN Annual Meeting on May 17-20, 2023, in Vienna. The 55th Annual Meeting of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition was at the forefront of education provision and knowledge exchange of innovative treatments and research discoveries to enhance the standards of care for patients and help paediatric gastroenterology,

Dr Teresa Casanovas, ELPA Director and Scientific Committee Leader and YiannoulaKoulla, leader of the ELPA Working Group on Fatty Liver, participated in the Innovations in NAFLD Care Workshop on May 26 and 27, 2023. Ms Koulla gave a presentation describing the care pathways of a liver patient during a lively session dedicated to patients’ organisations.

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ELPA Vice-President Julio Burman and ELPA Director Prof Gamal Shiha attended the EASL Liver Cancer Summit 2023 on April 20-22. Liver cancer is a significant health problem, and hepatocellular carcinoma (HCC) is considered one of the leading causes of cancer-related deaths worldwide. It is associated with many liver diseases such as Hepatitis B, C and

On April 29, 2023, representatives from EPF member organisations from across Europe gathered in person, in Brussels, for the Annual General Meeting. ELPA’s representative was Director Milan Mishkovikj. During the event, EPF’s board members, together with the Secretariat, reported on 2022 activities and gave an overview of the current and upcoming work plan for 2023.

On April 21, 2023, ELPA Vice-President Ivana Dragojević was invited to speak at the conference, where she discussed with the participants patient empowerment and how to reduce screening programs inequities. Organised in collaboration with ELPA member from Romania APAH-RO, the meeting was the occasion to present the conclusions from the LIVERO screening programs and the

In 2023 ELPA celebrated, as every year, Rare Disease Day on February 28. However, ELPA decided to organize a one-week campaign focusing on Rare Liver Diseases considering the success of the 2022 edition. It started with a message from the leader of the ELPA Working Group, Sindee Weinbaum, on Rare Disease Day on February 28,

In this event organised by ELPA with the title ‘The COMBAT-trial: A novel COMBinATorial therapy with albumin and enoxaparin in patients with decompensated cirrhosis at high risk of poor outcome,’ experts from DECISION explained the upcoming clinical trial to patient representatives. They discussed the recruitment process and what it means from an ethical perspective. Great

The IP-Cure-B General Assembly occurred on March 28-29, 2023.All the Principal Investigators and scientists involved in the project gathered in Milan to discuss the progress made in the framework of the project. ELPA representatives presented data and results in the framework of communication and dissemination being involved in the WP dedicated to these activities. The

ELPA is part of the new medical, scientific project GENIAL responsible for communication and dissemination. Alcohol-related hepatocellular carcinoma (ALD-HCC) is, in Europe, the leading cause of liver cancer. ALD-HCC has a median 5-year survival rate of 15%. Yet, the prognosis is driven by the tumor stage, with curative options providing a 5-year survival exceeding 70%

In March 2023, ELPA Vice-President Julio Burman visited one of the Spanish ELPA members based in Madrid: the National Federation of Liver Patients and Transplanted, FNETH. He spent two days visiting the association and hearing from its President, Eva Perez, and other representatives about their activities and future plans. The visit opened future collaboration between

On March 8, 2023, ELPA celebrated, as every year, International Women’s Day, and as every year, with the pleasure of talking with powerful and inspiring women. This year we published two interviews. The first one featured Dr Su Wang, who gave us a very interesting testimony of her personal and professional life as a doctor,

On February 28, 2023, Rare Disease Day, the European Liver Patients’ Association and the Wilson’s Disease Policy Network brought together key experts and stakeholders in Wilson’s disease, rare diseases and health policy. A range of speakers drew on the experiences of people living with Wilson’s disease to discuss how gaps in care and policy barriers

In February 2023, on World Cancer Day 2023, ELPA Board was invited to Mansura, Egypt, by Prof Dr Gamal Shiha, ELPA Director and CEO of the Association of Liver Patients’ Care, ELPA founder member. They had the occasion of visiting: the Egyptian Liver Research Institute, the Technical Institute of Nursing, the Smart Biomaterials research centre and

On January 17 – 19, 2023, ELPA attended the MICROB-PREDICT General Assembly as one of the project’s partners. ELPA President Marko Korenjak presented the communication and dissemination activities and data for 2022. He also explained how social media could support academic careers during a workshop on1 this topic. MICROB-PREDICT aims at developing personalised, microbiome-based treatment

It is with great satisfaction that the ELPA 'Socrates' survey will soon be ready for publication. The ELPA working group on MAFLD/NASH and the ELPA Scientific Committee announced that the survey shows interesting facts. Stay tuned!

Do you know that there is a clinical trial going on in the framework of the IP-cure-B project? The ANRS HB07 clinical trial is sponsored by ANRS | Emerging Infectious Diseases and takes place in different centres across Europe involved in the project. The EU-funded IP-cure-B project aims to develop novel curative concepts for chronic

On December 1, 2022, Michael Betel, President and Founder of the Fatty Liver Alliance and Marko Korenjak, President of ELPA - European Liver Patients' Association, introduced the First Annual NAFLD and NASH Primary Care Summit. This important multidisciplinary program wanted to raise awareness about crucial questions related to this liver disease. What are the knowledge

The European Health Emergency Preparedness and Response Authority (HERA), a vital pillar of the European Health Union, celebrated its first anniversary. On this occasion, a meeting was organized in Brussels on December 8, 2022. Some ELPA representatives attended the “One Year of HERA” conference, which was the moment to reflect upon HERA’s development from emergency

This fifth episode of the EASL Policy Dialogues Episodes gave the floor to patient advocates to discuss the stigmatisation surrounding liver diseases. How and why does stigma affect people with liver disease? What are the consequences for people with liver disease facing stigma? Which actions should be prioritised to mitigate the impact of stigma? Listen

At its exceptional December 2022 meeting, EMA’s Patients' and Consumers' Working Party (PCWP) elected ELPA President Marko Korenjak as PCWP co-chair. Marko and Juan Garcia Burgos, Head of Public Engagement at EMA, will co-chair the meetings of the PCWP. ELPA is hugely proud and confident that this new appointment will push liver and all patients'

The first IP-cure-B project laymen event took place on November 23, 2022. On the occasion of the ELPA educational training, some Principal Investigators of the project presented to ELPA members the scope of IP-cure-B and some aspects of the medical research in its framework. The project aims to develop novel curative concepts for chronic hepatitis

Every year, at the European Cancer Summit, the European Cancer Organisation brings together leading oncology experts, experienced patient advocates, key opinion leaders, policymakers and politicians to discuss critical issues in reducing the burden of cancer, saving and improving the lives of patients and the public. This year’s European Cancer Summit was on November 16-17 and focused on delivery and collaboration,

On November 26, 2022, ELPA Vice President Julio Burman presented ELPA’s activities during the IV meeting of experts and families affected by Lysosomal Acid Lipase Deficiency (LAL-D). He was invited by the Spanish Patient Organization Lysosomal Acid Lipase Deficiency (AELALD) ELPA member. LAL-D is a rare, chronic, progressive inherited disorder. It affects the body’s ability to

ELPA President, Marko Korenjak, was invited as a speaker in The Economist’s 8th Annual World Cancer Series Europe. The focus of this year’s conference, which takes place in Brussels on November 8-9, 2022, was ”innovation, equity, and excellence”. The event aimed to identify strategies to accelerate innovation, reduce inequities across Europe's cancer control, and build

The Fall edition of the ELPA Educational Training took place on November 9, 19, and 23, 2022. ELPA members could listen to presentations by industries and stakeholders this year focused on updates about rare liver diseases, liver cancer, NASH, and Hepatitis D. For its members, ELPA also launched the ELPA Clinical Programme 2022 - Building

Every year, ELPA organizes a meeting inviting its major partners and stakeholders in the field of patients’ advocacy in liver diseases. The ELPA Stakeholders’ Meeting 2022 took place on November 18, and it was a great moment of exchange and networking among ELPA members and representatives from many different associations and international organizations. Speakers: Prof

November 18, 2022, was an exceptional, meaningful, and emotional day for me. The European Liver Patients’ Association members recognized the work done in the association in the last years under my leadership. We managed to make quality and quantity changes in our work, and today, we are working on more projects with higher quality. Twenty

On November 4-8, 2022, some ELPA representatives participated in the AASLD annual meeting. Patients and Advocates were encouraged to attend to learn about the latest science through abstract tours and special educational sessions. A special track was designed to offer maximum interactive opportunities to ask questions, provide feedback, and discuss with the entire hepatology community.

15th Years Liver Patient Voice             2️⃣0️⃣0️⃣5️⃣-2️⃣0️⃣2️⃣0️⃣ Advocacy, Policy, Patients safety, Empowering and supporting ELPA members in #liverdiseases, awareness, prevention, Scientific community support..... 🇪🇺 EU Health and 🇺🇳 WHO Europe level



Thank you to all our supporters!!! There are many different causes of liver disease, which may be linked with liver cancer. Some of the most common include: Alcohol-related liver disease: caused by regularly drinking too much alcohol. Non-alcoholic fatty liver disease: frequently linked to being overweight, which may cause fat to build up in the liver and

Let our hearts speak On October 14th, Cyprus Liver Patients Association held with great success the Charity dinner 'Let our hearts speak' The purpose of this dinner was the awareness of the problems faced by transplant patients. As well as their financial support. These patients leave their homes, their jobs, their families, their own children

Members unanimously approved updates of ELPA Statutes, Codes of Conduct, and Internal Rules On February 24, 2022, ELPA held an Extraordinary General Meeting to discuss ELPA Statutes, Codes of Conduct, and Internal Rules changes. The revision of the three documents was necessary to update them to the Belgian Law. ELPA members from Bosnia and Herzegovina,

The first patient recruited in the IP-cure-B clinical trial The first patient has been recruited in the ANRS HB07 IP-cure-B clinical trial, sponsored by ANRS | Emerging Infectious Diseases and run by the Hospices Civils de Lyon - Hepatology Department, in Lyon, France, in the framework of the IP-cure-B project. The objective of the EU-funded

ELPA President Marko Korenjak-World Cancer Day

#AlcoholFree Holidays & Happy Healthy Liver! AlcoholFree-drinks-Recipe-Booklet-2 PDF DOWNLOAD - LINK AlcoholFree drinks Recipe Booklet[PDF]

Launch Of White Paper - Liver Cancer: No patient left behind Launch Of White Paper - Liver Cancer: No patient left behind Liver_Cancer_Infographic_v3 Liver_Cancer_Short_Summary-V3 Liver_Cancer_White_paper-V3-short Liver_Cancer_White_paper-V3

Rare Liver Diseases Liver diseases are referred as rare when they affect a small percentage of the general population. Theycan be either genetic (inherited) or auto-immune.Following is a list of some of the more common rare liver diseases: PBC - Primary Biliary Cholangitis– is mainly found in women and onset is usually found in middle

Launch of White Paper, Liver Cancer: No Patient Left Behind Jointly with DiCE Event description Hepatocellular Carcinoma (HCC) is the world’s 6th most common cancer and the 3rd most fatal. Every year, more than 98,000 European citizens are diagnosed with liver cancer, while around 89,000 die from the disease The purpose of the White Paper

EASL / ELPA – Beating liver cancer in Europe - The Empowerment of prevention and early detection Event description Under the patronage of the Slovenian presidency of the Council of the European Union, the European Association for Study of the Liver (EASL) and the European Liver Patients’ Association (ELPA)  are organizing an advocacy event with

ELPA is part of the EASL Policy and Public Health Committee ELPA is part of the EASL Policy and Public Health Committee Marko Korenjak, ELPA President, has been nominated as patients’ representative in the EASL Policy and Public Health Committee. The mission of the Committee is to provide EASL with expert scientific and policy guidance to enable

ELPA is part of the Advisory Forum of the European Centre for Disease Prevention and Control (ECDC) ELPA is an official member representing non-governmental organisations – patients, of the Advisory Forum of the European Centre for Disease Prevention and Control (ECDC). ELPA President Marko Korenjak has been selected to be part of the Advisory Forum.

ELPA Educational Training - DAY 4 The fourth and last day of the ELPA Educational Training took place on July 7, 2021. Three presentations from pharma companies were scheduled, and this was probably the most interactive day of the entire training. The morning started with a representative from Novo Nordisk, Dr. Ichhya Shrestha, MD -

ELPA Educational Training - DAY 3 The third day of the ELPA Educational Training took place on June 30, 2021, and focused not only on presentations delivered by pharma companies' representatives. The meeting started with Ms. Mireia Alemany, who presented 'A Healthy Liver Will Always Deliver!', a comic to raise NAFLD awareness and promote healthy

ELPA Educational Training - DAY 2 The second day of the ELPA Educational Training took place on June 23, 2021. After the first day that hosted presentations on Horizon 2020 medical, scientific projects, the second day focused on presentations delivered by pharma companies’ representatives. The meeting started with Dr. Salvador Augustin, MD from Boehringer Ingelheim,

ELPA ISO 9001:2015 Quality Certification On 29th June 2021, ELPA has achieved something extraordinary. ELPA is now the FIRST and the ONLY patient association in Europe with the official certification of the Quality Management System in place. ELPA managed to build a quality system of its work, recognized by an external certification body, and got the

Raising awareness on #FattyLiver among children ELPA is back to school. Between May and June 2021, ELPA was involved in the EU Project PaCo," Participation in Society through Classroom Activities and Cooperation." The project, financed in the framework of the Erasmus+ programme, involves 6 countries: Finland, Estonia, Spain, Hungary, Czech Republic, and Slovenia. It aims

ELPA Educational Training - DAY 1 ‘Therapies for acute decompensation of cirrhosis and ACLF, research needs and outlook.’ Under this title, ELPA presented, on June 9, 2021, its first Educational Day dedicated to DECISION, MICROB-PREDICT, and A-TANGO, all projects ELPA is involved in. Three EU-funded research projects, MICROB-PREDICT, DECISION, and A-TANGO, joined forces to improve

ELPA NASH Symposium The European Liver Patients Association (ELPA) organized a virtual NASH Symposium on June 10, 2021. This Symposium that is just the culmination of a series of actions promoted during the entire #FattyLiverMonth, besides the scientific approach of the disease by eminent speakers, also allowed NASH patients to share with ELPA their own

Latest updates on COVID-19 vaccines ELPA, as part of the Patients' and Consumers' Working Party (PCWC) at the European Medicines Agency (EMA) would like to share with you EMA’s recent communications on COVID-19 vaccines: First COVID-19 vaccine approved for children aged 12 to 15 in EU Insufficient data on use of inhaled corticosteroids to treat COVID-19

ELPA president Marko Korenjak-European Immunization Week European Immunization Week (EIW) Dear ELPA friends, The WHO European Region celebrates European Immunization Week (EIW) every year in April to raise awareness of the importance of immunization in preventing diseases and protecting life, ensuring overall health protection. The COVID-19 pandemic has demonstrated the importance of immunization; COVID-19 vaccination is

A new partnership in the fight to Hepatitis The European Patients’ Association (ELPA) is proud to announce the signature of a new Memorandum of Understanding (MoU) with The Coalition for Global Hepatitis Elimination (CGHE) - Task Force for Global Health. The MoU was signed by Mr. Marko Korenjak, President of ELPA, and Dr. John Ward,

COBALT-Study The Covid-19 pandemic has disproportionately affected liver patients - patients with chronic liver disease have around 5-times increased mortality from Covid-19 than individuals without liver disease. Therefore, the development of vaccines is a welcome step, but we don't yet know if they are fully protected in liver patients. Early data from the US demonstrates

This is custom heading element On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver disease, and patients' associations. The event was

SAVE THE DATE - International Viral Hepatitis Elimination Meeting, 3-4 December 2021 The International Viral Hepatitis Elimination Meeting (IVHEM) is a global forum for the exchange of practical experiences for translating diagnostic and therapy advances of viral hepatitis into broad applications that accelerate progress towards the elimination of viral hepatitis as a public health threat

'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver disease, and patients' associations. The

This is custom heading element 'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver

‘Successful women in ELPA’s family,’ second act 'Successful women in ELPA's family,' second act   On March 8, 2021 – Women's Day, ELPA organized 'Successful women inELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient

Ivana Dragojevic - Women's Day I know you for a few years, but I don't know anything about you...how being an artist fits with the field of patients advocacy? Firstly I want to say Emilia will be dearly missed, she was passionate and happy about everything. Secondly, I want to say that I'm honored to

‘Successful women in ELPA’s family,’ second act 'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient

Joint Press Release-EUPATI-ELPA Joint-Press-Release-EUPATI-ELPA

An interview of Prof Ginès On March 9th 2021, Prof Ginès was invited onto a national radio programme to discuss Ascites, its causes and treatment.  This interview was for the general population and he discussed how liver diseases develop, progress and also the stigma related to cirrhosis and liver diseases. Check it out here https://mediavod-lvlt.rtve.es/resources/TE_SFEMSAL/mp3/6/3/1615300867336.mp3

'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver disease, and patients' associations. The

Elpa President Marko Korenjak-World Obesity Day

STATEMENT FOR WORD OBESITY DAY 2021 STATEMENT FOR WORD OBESITY DAY 2021 ELPA NASH WORKING GROUP-STATEMENT FOR WORLD OBESITY DAY 2021

We are proud to be part of PWCR #EMA European Medical Agency

1st Liver Cancer Patients' Summit - Key messages 1st Liver Cancer Patients' Summit - Key messages

VIDEOS OF LIVERSCREEN PROJECT IN CONSORTIUM LANGUAGES

This is custom heading element Profiling circulating microRNAs in patients with cirrhosis and acute-on-chronic liver failure

ELPA participated in Multi‐stakeholder Consensus on Core Outcomes for Decision Making About Nonalcoholic Steatohepatitis Treatment A multi‐stakeholder group from North America and Europe was invited to participate in the research with the Delfi method, and participants were categorized into patients/patient advocates, clinicians/researchers, U.S. payers, health technology assessors, industry representatives, or regulators. Participating patients and patient

The Israeli National Programme for Hepatitis C elimination, nothing without liver patients' organization "Patients have the right to know, and the system must let them know." With these words, Mr. Burman started the conversation with ELPA. On the occasion of the launch of the Israeli National Programme for Hepatitis C elimination on February 17, 2021,

ELPA - Liver Cancer Patients' Summit On February 4, 2021, World Cancer Day, ELPA organized the first Liver Cancer Patients' Summit. The goal was to raise awareness about liver cancer and multidisciplinary team, focusing on information for and from patients. After a video introduction where Dr. Tomislav Sokol, Member of the European Parliament - Group

‘We should fight WITH the patients and not FOR the patients,’ goodbye Emilia Today ELPA has lost one of its most passionate friends, Emilia Rodrigues. She was the President of SOS HepatitesPortugal, ELPA member since 2005; she was also of ELPA Supervisory Committee and later an ELPA Advisor to the ELPA Board. In addition, Emilia

This is custom heading element ‘Do not be afraid, just believe in science’; these are the first words Sindee told ELPA. ELPA reached Ms. Sindee Weinbaum, representative of the ELPA Member Hetz, the Israeli Association For The Health Of the Liver, and the ELPA Working Group leader on Rare Liver Diseases. She is the first

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ELPA Stakeholders’ Meeting, Europe in 2021 – 2nd December 2020 ELPA Stakeholders’ Meeting, organized on 2nd December 2020, was the occasion to gather with some representatives of the most prominent associations in the field of liver diseases and patients’ advocacy. After a short introduction by ELPA President Marko Korenjak, the first speaker took the floor.

ELPA Educational Training – DAY FIVE, 2nd December 2020 The fifth and last day of ELPA Educational Training on December 2, 2020, was composed of a mix of presentations from Pharma Companies and representatives from the medical-scientific field. The meeting started with ELPA President Marko Korenjak welcoming everybody. Representatives from AstraZeneca delivered a two-part presentation.

ELPA Educational Training – DAY FOUR, 25th November 2020 The fourth day of ELPA Educational Training on November 25, 2020, was once again entirely dedicated to presentations from Pharma Companies. The meeting started with ELPA President Marko Korenjak welcoming everybody. Dr. McWherter, the representative of CymaBay, delivered the first presentation. He went deep into the

ELPA Educational Training – DAY THREE, 18th November 2020 This ELPA Educational Training never ceases to surprise its attendees. The third day on November 18, 2020, was divided into two different parts. Before presentations from Pharma Companies, ELPA went sporty. Yianoulla Koulla and Veronika Všetičkova, ELPA working group on MAFLD and NASH, animated a session

ELPA Educational Training – DAY TWO, 11th November 2020 Differently from day one, the second day of ELPA Educational Training on November 11, 2020, was entirely dedicated to presentations from Pharma Companies. The meeting started with ELPA President Marko Korenjak welcoming everybody. Dr. Elliot Norry, the representative of Adaptimmune, delivered the first presentation. He went

About Alcohol abuse, the Awareness Week on Alcohol Related Harm is approaching The public health aspects of the problems associated with alcohol use and abuse are exploding. Around 12% of cancer cases worldwide are linked to alcohol consumption, and Europe is the world's heaviest drinking region. Alcohol abuse has devastated many lives and significantly harmed

ELPA Educational Training – DAY ONE, 4th November 2020 The first day of ELPA Educational Training on November 4, 2020, started with ELPA President Marko Korenjak, stressing why that first day was entirely dedicated to members. He explained that ELPA’s activities’ structure is changing because the workgroups put together members that want to be active

New synergies for ELPA We are pleased to announce that ELPA signed a Memorandum of Understanding (MoU) with the European Kidney Patients' Federation (EKPF). This new MoU has as the objective to formalize the cooperation between EKPF and ELPA to improve the well-being of patients and provide support to the patient population. The two associations

ELPA Director elected Vice President of the “Alliance of Patient Organizations” of Macedonia ELPA would like to congratulate Milan Mishkovikj, ELPA Director, for having been elected Vice President of the “Alliance of Patient Organizations” of Macedonia. The “Alliance of Patient Organisations” is an organisation gathering patient organisations from FYROM – North Macedonia (Created in 2016).

ELPA and DiCE meeting on liver cancer. ‘Together we are EVEN stronger’ On October 21, 2020, on the occasion of Liver Cancer Awareness Month, the European Liver Patients’ Association joined forces with Digestive Cancers Europe (DiCE) organizing, in the framework of DiCE Masterclass series, the webinar ‘Deep Dive into Liver Cancer’. This session delved into

PSC Day 2020 PSC Day 2020-Materials PSC MATERIALS FLIPBOOK [dflip id="4059" type="thumb" ][/dflip] DOWNLOAD PDF MATERIALS - LINK PSC Materials [PDF]

New article on HCC published in Liver International by Prof. Shiha, ELPA Director ELPA is proud to announce the publication on Liver International of the article ‘GES: A validated simple score to predict risk of HCC in patients with HCV-GT4 associated advanced liver fibrosis after oral antivirals’ written by Pof. Gamal Shiha, Director of the

Breaking News Nobel Prize for Medicine goes to #Hepatitis C discovery !

October Liver Cancer Awareness Month

This is custom heading element 1 What is PBC? Primary biliary cholangitis, or PBC, is a chronic and progressive hepatitis of long duration affecting mostly women between 35 and 60. Men are less affected by PBC, probably not more than 1 out of 10 cases. However, their PBC prognosis tend to be poorer, compared to

ELPA President Marko Korenjak -World Patient Safety Day'20

Decision project The first online patient event of the DECISION project took virtually place on 31st August 2020. In the DECISION project, 21 European institutions join forces to tackle end-stage liver disease and liver failure with a systems medicine approach. Over the next 5.5 years, the DECISION research consortium will analyse and integrate data from

EASL Digital ILC meeting 2020 EASL Digital ILC meeting 2020 Let’s congratulate all together to EASL for their very first EASL Digital ILC meeting held on 27th-29th August 2020, as we very much appreciate the great effort made in these times of crisis. We are positive that we speak for all liver patients when we

ELPA Educational training - Series of webinars, 17th June - 8th July 2020 The very first virtual ELPA Educational training started on 17th June 2020 with the greetings by ELPA President, Marko Korenjak. After a short tour of presentation by all the attendees the floor has been taken by Dr. Teresa Casanovas Taltavull. She broke

ELPA educational training day 4 The last day of the ELPA Educational training on July 8, 2020 - exceptionally in a virtual form - was extremely dense with information, debates and exchanges among ELPA members, attendees and a remarkable variety of panellists. After an introduction by ELPA President Marko Korenjak, the floor was taken by

ELPA President invited to a high-level political meeting with German government’s representatives ELPA President Marko Korenjak was personally invited by Theresia Bauer, the Minister of Science, Research and Arts of the State of Baden-Württemberg, Germany to the online-event: "No one size fits all: Artificial Intelligence as Key Technology for Personalised Medicine". On July 3, he,

ELPA joined the EASL Patient Groups Community ELPA is proud to announce that it became part of the EASL Patient Groups Community. ELPA’s successful application is just the latest step of a long and fruitful collaboration started many years ago. However, it is also a fresh start to strengthen ELPA’s partnership with EASL even more

This is custom heading element On July 1, 2020 ELPA organized its third day of Educational training exceptionally in a virtual form. All the ELPA members’ representatives attending the meeting had a short conversation together about the role of patients’ organizations and they exchanged updates about ELPA’s activities. After an introduction by ELPA President Marko

This is custom heading element The second day of the virtual ELPA Educational training was held on June 24, 2020. After a short introduction by ELPA President Marko Korenjak, Dr. Teresa Casanovas Taltavull took the floor. During her presentation all the attendees had the possibility to listen to a detailed overview about optimising outcomes in

This is custom heading element Washington DC, June 9, 2020 – The Forum for Collaborative Research announced the acceptance and online publication of the manuscript, “Standardization of Diet and Exercise in Clinical Trials of NAFLD-NASH: Recommendations from the Liver Forum” in Journal of Hepatology. “Lifestyle modification is the foundation of treatment recommendations for nonalcoholic fatty liver disease

EU Booklet ELPA-Scientific-Booklet-2021-WEB PDF DOWNLOAD - LINK EU Booklet [PDF]

This is custom heading element ELPA has been chosen to be part to the EU HIV/AIDS, viral hepatitis and tuberculosis Civil Society Forum. The CSF Coordination Team finalised the application process to the new CSF and ELPA, along with 61 organisations plus two partner organisations, is officially one of the new member organisations. The first

ELPA Educational Training – DAY ONE, 17th June 2020 The very first virtual ELPA Educational Training started today, 17th June with the greetings by ELPA President, Marko Korenjak. After a short tour of presentation by all the attendees the floor has been taken by Dr. Teresa Casanovas-Taltavull. She broke the ice presenting about the impact

This is custom heading element ELPA is proud to be one of the partner who collaborated in the new European Vaccines Information Portal (EVIP). Developed by ECDC in close collaboration with EMA and the European Commission, EVIP is now publicly available. It was created following a Council Recommendation on ‘strengthened cooperation against vaccine-preventable diseases’. The

International Women's and Children's Health and Gender Group VIRTUAL Conference REGISTRATION FEES WAIVED! International Women's and Children's Health and Gender Group  VIRTUAL Conference Friday, June 19, 2020 10:00 AM to 4:30 PM EDT Virtual via Zoom Register Here Online registration will close at 5:00 PM EDT June 17. You MUST be registered to receive the Zoom link

ELPA in the Impact Board of the medical research project Decision ELPA president Marko_Korenjak has been elected as member of the Impact Board of the medical research project Decision. This project, of which ELPA is part, is focused on the end-stage chronic liver disease (cirrhosis) that is a major cause of morbidity and mortality, and

Stronger Together against Liver Cancer! Digestive Cancers Europe (DiCE) and the European Liver Patients Association (ELPA) Start Official Partnership Today, Digestive Cancers Europe (DiCE) and the European Liver Patients Association (ELPA) signed a Memorandum of Understanding. The agreement brings about a formidable and active patient advocacy partnership that allows the two organisations to put their

This is custom heading element 15th Years Liver Patient Voice  2️⃣0️⃣0️⃣5️⃣-2️⃣0️⃣2️⃣0️⃣ Advocacy, Policy, Patients safety, Empowering and supporting ELPA members in #liverdiseases, awareness, prevention, Scientific community support..... 🇪🇺 EU Health and 🇺🇳 WHO Europe level

15th Years Liver Patient Voice 2005-2020 15th Years Liver Patient Voice 2005-2020                                                       Advocacy, Policy, Patients safety, Empowering and supporting ELPA members in #liverdiseases, awareness, prevention, Scientific community support.....

COVID19 & Liver Disease  ELPA Statement #COVID19 & #Liverdisease President Marko Korenjak 🇺🇳WHO Europe 🇪🇺 EU Health Patients with advanced liver disease and recipients of liver transplants represent vulnerable groups and are likely to be at an increased risk of infection and/or a severe course of COVID-19. In addition, the COVID-19 pandemic is placing an

Croatian Association for Liver Diseases In order to provide users of the Mobile InfoHep Center with a complete "link to care" service, Croatian Association for Liver Diseases "Hepatos" in cooperation with the Public Health Institute of SDC,  is offering individuals, who need it, PCR testing for viral hepatitis so that infected people can be included

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This is custom heading element AASLD meeting Boston, 8-12 November 2019 From November 8th to November 12th, 2019 ELPA participated in the AASLD meeting in Boston. ELPA was represented by President Marko Korenjak, Vice-President Julio Burman and Dr. Teresa Casanovas Coordinator of the ELPA Scientific Committee. The main purpose of the ELPA attendance at the

This is custom heading element LIVERHOPE h2020 Publication "Simvastatin and Rifaximin as new therapy for patients with decompensated cirrhosis" https://t.co/h9l18aBSyY

This is custom heading element ASSCAT (Associació Catalana de Pacients Hepàtics) and ELPA (European Liver Patient's Association) participated past 22nd-23rd November 2019 in the European Workshop on NASH in Clinical Practice in Barcelona. In session 6: Future Treatment and Management options they were invited to share Patient Perspective on NASH by Ms Maite Pujol, ASSCAT associated and Dr Teresa Casanovas, ELPA Scientific Committee coordinator.

This is custom heading element ELPA President @Marko_Korenjak live from @EUparliament. We wish you a Merry Christmas and successful New Year to all our members, stakeholders, partners and friends. @EU_Health @ECDC_EU @ECDC_HIVAIDS @SKyriakidesEU @anne_bucher @NASH_Education @rixwolff @EASLnews @hans_kluge @WHO_Europe @ACHIEVE_hep @VHPBorg @JVLazarus @phil_newsome7 @GlobalTaskforce @WHA #EuroTestWeek'19 #EndHep Europe #NOhep....

This is custom heading element ELPA meeting in Barcelona started on 2nd December with the Stakeholders' meeting where ELPA Members had the possibility to hear amazing speakers presenting some key priorities for the next year. Prof. Dr. Pere Ginès and his team from the Hospital Clínic Barcelona gave a speech about the prevalence and mortality

This is custom heading element On 3rd December, during the second day of ELPA educational training programme, ELPA was very honoured to have secured a visit at the Hospital Clinic in Barcelona - Hepatology unit for all ELPA members. This liver unit is the biggest liver unit in Europe and one of the biggest in

This is custom heading element ELPA educational training started on 3rd December. ELPA members from Bosnia and Herzegovina, Cyprus, Croatia, Denmark, Finland, Georgia, Ireland, Israel, Macedonia, Norway, Portugal, Romania, Russia, Spain, Serbia, Slovakia, Slovenia, Sweden, the UK, and Turkey had the possibility to hear speakers presenting some inspiring project and to debate amongst them. GILEAD

This is custom heading element In Barcelona on 2nd December an ELPA Extraordinary General meeting was held. ELPA members needed to vote and adopt new ELPA's Statutes. Indeed, in accordance with the provisions of the new Belgian Code of Companies and Associations, ELPA Statutes has been reviewed also with the collaboration of Belgian professionals for

This is custom heading element Announcement of #EuroTestWeek'19 #EndHep in Europe!

This is custom heading element WHD 2019 report of Hepatos PDF DOWNLOAD - LINK Hepatos Activities [PDF]

This is custom heading element  WHD 2019 report of HepatosInternational NASH Day 2019 report of Hepatos DOWNLOADS WHD 2019 report of Hepatos [PDF] International NASH Day 2019 report of Hepatos [PDF]

This is custom heading element 1.       ISPOR Europe 2019, Location: Bella Center Copenhagen Center, Boulevard 5 DK-2300 Kobenhavn S, Copenhagen, Denmark, https://www.ispor.org/conferences-education/conferences/upcoming-conferences/ispor-europe-2019 2.       EMA Committee for Advanced Therapies (CAT), Location: Amsterdam, https://www.ema.europa.eu/en/events/committee-advanced-therapies-cat-06-08-november-2019 3.       One Health Day campaign event, Location: Across the world, https://onehealthplatform.com/one-health-day 4.       NCRI Cancer Conference, Location: Scottish Event Campus, Glasgow, United Kingdom, https://conference.ncri.org.uk/ 5.       ISPOR Europe 2019, Location: Bella Center Copenhagen Center,

This is custom heading element Naslov I am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. I am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut

This is custom heading element Liver cancer is a major health problem. Liver cancer is cancer that begins in the cells of your liver. Your liver is a football-sized organ that sits in the upper right portion of your abdomen, beneath your diaphragm and above your stomach. Several types of cancer can form in the liver.

This is custom heading element ELPA was one of the biggest social media influencer on NAFLD Summit. Fatty liver problem will be one of the biggest issue in Europe in the next decade. ELPA is very happy that also doctors are recognizing the importance of patient’ Pre-Summit events, such as this one. ELPA Pre-Summit on

This is custom heading element ELPA Educational days were held in Split, Croatia where 22 ELPA members’ representatives came together to exchange opinions, follow up on ELPA’s work and progress and create a clear vision for the future. The first day was proposed by company Norgine, when we talked about the importance of social media

This is custom heading element “Save the date! ELPA announces ELPA Pre-Summit on NAFLD – information for and from patients, patient experiences and views on NAFLD, as a back to back event to EASL NAFLD Summit on 26th September 2019 in Seville, Spain. As times are changing so does our approach. NAFLD is very much becoming

This is custom heading element Kindly note, that ELPA is currently looking for an administrative help in Brussels’ office for 2 to 3 days per week. Brussels based and fluently speaking English and French languages is mandatory! Preferably we look for person that has experience in working in administration in Brussels. Job Duties: provide administrative

This is custom heading element Patient Support materials Health & Wellness Guide_DigitalHE Guide DigitalNutrition Guide digitalAscites Guide DigitalHCC Guide DigitalVariceal Bleeding Guide Digital Documents Health Wellness Guide [PDF] HE Guide [PDF] Nutrition Guide [PDF] Ascites Guide [PDF] HCC Guide [PDF] Variceal Bleeding Guide [PDF] Latest News Hepatits&Liver – debunking some mythsHepatits&Liver – debunking some myths

El gobierno catalán aprobó la semana pasada el Plan de Prevención y Control de la Hepatitis C en Cataluña, que contempla su eliminación como problema grave de salud pública el año 2030.

Gilead ha seleccionado siete proyectos de cuatro organizaciones por iniciativas que mejoran la calidad de vida de los pacientes en Cataluña, para becarlas en la I edición de su Community Grants & Donations Program, aunque las becas existen desde hace 10 años.

Gilead, compañía de la que María Río es directora en España, celebró ayer la VII edición de sus becas a la investigación médica.

Entre los días 27 y 29 de junio, Teresa Casanovas, presidenta de la Asociación Catalana de Pacientes Hepáticos (ASSCAT) participó en la reunió formativa de ELPA (European Liver Patients’ Association) en Split, Croacia.

Hace algo más de quince años la infección activa por el virus de la hepatitis C (VHC) en personas con VIH se situaba en el 55% y en la actualidad ese porcentaje se ha reducido en más de un 80% hasta caer al 2,5%.

Pretende actuar, escalonadamente y con un abordaje comunitario, en cinco ámbitos: alimentación, actividad física, sedentarismo, horas de sueño y otras conductas.

Un estudio internacional descubrió que sólo el 30% de los médicos que prescriben terapia de sustitución de opioides a personas que se inyectan drogas también prescriben AADs, a pesar de estar en una posición ideal para ofrecer pruebas y tratamiento para la hepatitis C.

La Agencia Española de Medicamentos y Productos Sanitarios (AEMPS) ha comunicado la producción de casos de reactivación del virus de la hepatitis B (VHB) en pacientes tratados con daratumumab.

Uganda ha sido la sede de la primera Cumbre Africana de la Hepatitis, celebrada entre el 18 y el 20 de junio.

Una vacuna experimental no resultó efectiva en la prevención de la infección crónica por el virus de la hepatitis C (VHC) en adultos, según los resultados de un ensayo clínico.

This is custom heading element Brussels, 10 January 2019 European Liver Patients' Association has held a second edition of its NAFLD - NASH meeting on 9th of January 2019. The meeting was hosted by Carlos Moedas, European Commissioner for Science, Research and Innovation and was held in the European Commission in Brussels. Gathering experts form

This is custom heading element On 26 February 2019, the European Liver Patients’ Association (ELPA) held a policy roundtable entitled ‘The burden of Liver disease in Europe: The case of Hepatic Encephalopathy’ in the European Parliament. The event, co-hosted by the Members of the European Parliament (MEPs) MEP Cristian-Silviu Bușoi (EPP) and MEP Tiemo Wölken

This is custom heading element Workshops ( team building) for ELPA members (who at the end shared their work experiences for 2018) At the workshop the members showed their practical use of knowledge for the EU Projects in Liver Diseases and also shared their ideas for future implementations in the EU Projects . At the

This is custom heading element ELPA Symposium '19 “NAFLD and NASH from the patients’ perspective: what are the patients’ problems?” The Symposium take place on  the 11th of April 2019 during EASL International Liver Congress in Vienna. Prevalence of NAFLD and NASH is increasing, cirrhosis and liver failure associated with NAFLD and NASH is increasingly

This is custom heading element EASL '19 Welcome speech  ELPA president Marko_Korenjak "Only working together can bring results - patients and medical professional" #ILC2019 The International Liver Congress™ is the annual EASL'19 meeting, and the flagship event in EASL’s educational calendar. Every year in April, scientific and medical experts from a broad range of fields including

This is custom heading element For several years ELPA was part of eligible organizations to offer support, advise and participation at the consultations in European Medicine Agency. From this year, we are also part of The Patients' and Consumers' Working Party at European Medicine Agency. The Patients' and Consumers' Working Party (PCWP) provides a platform

This is custom heading element Second international NASH day was celebrated in several cities in the world with organization of different events. In Brussels ELPA president Marko Korenjak and ELPA vice president Julio Burman participated with short presentation in an event that was also broadcasted life on the internet. Their contribution was focused on many

This is custom heading element Finnish NGO under the leadership of Sari Hogstrom organized an event on hepatitis elimination in Finnish Parlament and also an event about hepatitis micro elimination in the gropu of PWID's in Finnland. In Finnish Parlament ELPA president Marko Korenjak presented ELPA and also ways to ensure the patients voice in

This is custom heading element ELPA Office Manager Open call: ELPA Office Manager ELPA IS CURRENTLY LOOKING FOR THE NEW ELPA OFFICE MANAGER WHO NEEDS TO BE BASED IN BRUSSELS AND BE FLUENT IN ENGLISH AND FRENCH LANGUAGE. OFFICE MANAGER JOB DUTIES: Maintains office services by organizing office operations and procedures Designs and implements office

This is custom heading element ELPA was invited by the European Association for the Study of the Liver (EASL) to participate at NAFLD SUMMIT 2018 in Geneva, from 20 to 22 September. The program was focused on scientific and industry partners in NAFLD and NASH. ELPA was able to present the patient view on the

This is custom heading element Many liver patients suffer from stubborn prejudices. They are reluctant to tell colleagues, friends or employers about their condition. Besides the burden of being sick they also carry the burden of silence. Many liver patients are afraid to be called an alcoholic, while only a small percentage of liver diseases

This is custom heading element Biographies-Speakers-web NASH-NAFLD-Summit-Agenda_DRAFT_2017-05-26 The first European Policy Summit on non-alcoholic fatty liver disease was organised by the European Liver Patients’ Association (ELPA) in partnership with the European Association for the Study of the Liver (EASL) and took place in the European Parliament the 31 of May 2017 hosted by Alojz Peterle,

This is custom heading element Video for rising awarness about hepatitis C "Hepatitis C is a curable disease". There are approximately 700 thousands patients in Turkey. But all of them don't know that they are patient. 70 volunters have photo taken for this video: They are not patients... 11 doctors, 8 journalists, 8 economist, 3

This is custom heading element Zagreb, February 19, 2016: Croatian Liver Society "Hepatos", WHO country office and MEP Biljana Borozan, the host of the meeting, have organized the high level meeting "Hepatitis C: The Beginning of the End - Are we ready to think about the elimination of HCV in Croatia" at the Palace Hotel

This is custom heading element For many years, “Hetz” is helping liver patients and their families across Israel cope with the disease and seek the best possible treatment. This year, Hetz has added a new focus to its association’s scope of activities. In addition to all the patient-support activities, the association is now very focused

This is custom heading element Politicians, professionals and patients shared the need for the establishment and implementation of projects for national programs to fight the virus hepatitis B BULGARIA Today, March 5, 2015, at the initiative of the Health Care Committee at the 43rd National Assembly, Bulgarian Association for the Study of Liver Diseases and

This is custom heading element World Hepatitis Day, 28 July, 2014: Celebration in croatia As in the previous years, Croatian Association of treated and ill from Hepatitis (CATIH Hepatos), along with Croatian Alliance of Hepatitis Patient Associations, organised activities on occasion of World Hepatitis Day (WHD) in order to raise awareness of hepatitis, known as

This is custom heading element To commemorate World Hepatitis Day 2014 and increase public awareness on hepatitis B and C, Hepar Centar-Bitola held various activities which improved the understanding of the hepatitis-related issues and triggered public support in favour of actions to address the disease in an effective and systematic manner at the national level.

This is custom heading element World Hepatitis Day 2014 in Poland The Star of Hope (Gwiazda Nadziei) Foundation was the organiser of World Hepatitis Day in Poland this year. The patrons of this event were the Polish Hepatitis Society (Polskie Towarzystwo Hepatologiczne) and The Hepatitis Coalition (Koalicja Hepatologiczna). The WHD event consisted of many parts;

This is custom heading element The event was held 2 days prior to the global day (July 28th) on July 26th due to the Egyptian holiday July 28–30, 2014 (feast). It was held at ELRIAH patients waiting hall among patients, guests, kids and employees. The celebration involved liver patients attending Egyptian Liver Research Institute and

This is custom heading element Under the slogan "Stop Hepatitis! Beware of A, B, C and D", the Association of Patients with Liver Diseases in Romania (APAH-RO) held a broad information campaign among the population on the occasion of World Hepatitis Day” Under the slogan "Stop Hepatitis! Beware of A, B, C and D", the

This is custom heading element On occassion of World Hepatitis Day 2014, President of the Republic of Croatia received ELPA president, mr.sc.Tatjana Reić, representatives from CATIH HEPATOS - Croatian Assocciation of Treated and Ill from Hepatitis and Croatian Alliance of Hepatitis Patient Associations who gave the President insight into Croatian situation regarding viral hepatitis. This

This is custom heading element Vienna, July 28th, 2014 Statistic data show that approximately 60,000 to 80,000 people in Austria suffer from Hepatitis C, a viral disease affecting the liver that is still largely treated as a taboo. In order to increase awareness for the disease and the situation of those affected, this morning, on

This is custom heading element Report from the press conference from July 15th, 2014 in Vienna From Prof. Dr. Peter Ferenci / Austria Treatment of chronic hepatitis C is a success story of modern medicine. For the first time a chronic viral disease became curable, with a well tolerated oral treatment over just 12 weeks.

This is custom heading element ELPA member VIMOR is organizing an awareness and screening campaign covering the whole of Hungary. There will be 15 locations in 15 cities nationwide where hepatologists and members of patient associations will help raise awareness. A number of information leaflets will be available for the general public including a questionnaire

This is custom heading element Big Yellow C’s at Thessaloniki The Hellenic Liver Patient Association "Prometheus" in the context of the main pillars of action, such as raising awareness and knowledge of general and specific population, visited Thessaloniki in order to continue the awareness campaign from Athens, with the campaign named C-afora. From 26.04.2014 to

This is custom heading element On February 24, 2014, the Association for helping patients with chronic viral hepatitis - HRONOS organized a public event "Serbia with hepatitis in 2014" in cooperation with the Clinical Center of Serbia, the Institute for Public Health "Dr Milan Jovanovic Batut" and the Office for civil right.

This is custom heading element 28 July 2013 - World Hepatitis Day “This is hepatitis. Know it. Confront it.” This July 28 (World Hepatitis Day) was an opportunity for Sano-Hep Romania, to report on the activities that the organization, with all its subsidiaries, has developed in support of people with hepatitis B and C and

This is custom heading element HEPTA-Organization of citizens, ”Association for health education, prevention and improved treatment” in collaboration with NGOs Option and Red Cross Ohrid, conducted a series of awareness and educative activities on the occasion of World Hepatitis Day 2013. 1. Educational flyers were distributed to the general public along the beaches in Ohrid.

This is custom heading element Flash mob: „I don’t see, I don’t hear, I don’t speak about Hepatitis” Find all the photos from the flash mob and the Guiness World Record attempt by clicking here! 28th of July 2013 - More than 250 people in Romania participated this Sunday on World Hepatitis Day between 12:00-14:00,

This is custom heading element The Association of Liver Patients Care (ALPC in Dakhlya- Egypt) under the head of Dr. Gamal Shiha, organized a public awareness campaign to commemorate this year's World Hepatitis Day (July 28). The campaigning was organized in Dakhlya and was extensively covered by the local media. For the awareness campaigns, ALPC