ELPA Rare Liver Disease Week 2023

In 2023 ELPA celebrated, as every year, Rare Disease Day on February 28. However, ELPA decided to organize a one-week campaign focusing on Rare Liver Diseases considering the success of the 2022 edition.

It started with a message from the leader of the ELPA Working Group, Sindee Weinbaum, on Rare Disease Day on February 28, 2023. Then, it continued tackling a different liver disease every day from different angles. ELPA collected contributions from the medical and scientific community but also from patients, patients’ family members, and patient advocates. The week ended with the closing remarks by ELPA President Marko Korenjak, encouraging ELPA followers, friends, supporters and stakeholders to work together to make rare disease patients’ lives better. Videos were done in the form of lectures or interviews. All videos can be watched on the ELPA YouTube channel or through all ELPA media channels.