2nd A-TANGO newsletter 

Thank you to all our supporters!!! There are many different causes of liver disease, which may be linked with liver cancer. Some of the most common include: Alcohol-related liver disease: caused by [...]

Let our hearts speak On October 14th, Cyprus Liver Patients Association held with great success the Charity dinner 'Let our hearts speak' The purpose of this dinner was the awareness [...]

Members unanimously approved updates of ELPA Statutes, Codes of Conduct, and Internal Rules On February 24, 2022, ELPA held an Extraordinary General Meeting to discuss ELPA Statutes, Codes of Conduct, [...]

The first patient recruited in the IP-cure-B clinical trial The first patient has been recruited in the ANRS HB07 IP-cure-B clinical trial, sponsored by ANRS | Emerging Infectious Diseases and [...]

ELPA President Marko Korenjak-World Cancer Day

#AlcoholFree Holidays & Happy Healthy Liver! AlcoholFree-drinks-Recipe-Booklet-2 PDF DOWNLOAD - LINK AlcoholFree drinks Recipe Booklet[PDF]

Launch Of White Paper - Liver Cancer: No patient left behind Launch Of White Paper - Liver Cancer: No patient left behind Liver_Cancer_Infographic_v3 Liver_Cancer_Short_Summary-V3 Liver_Cancer_White_paper-V3-short Liver_Cancer_White_paper-V3

Rare Liver Diseases Liver diseases are referred as rare when they affect a small percentage of the general population. Theycan be either genetic (inherited) or auto-immune.Following is a list of [...]

Launch of White Paper, Liver Cancer: No Patient Left Behind Jointly with DiCE Event description Hepatocellular Carcinoma (HCC) is the world’s 6th most common cancer and the 3rd most fatal. [...]

EASL / ELPA – Beating liver cancer in Europe - The Empowerment of prevention and early detection Event description Under the patronage of the Slovenian presidency of the Council of [...]

ELPA is part of the EASL Policy and Public Health Committee ELPA is part of the EASL Policy and Public Health Committee Marko Korenjak, ELPA President, has been nominated as [...]

ELPA is part of the Advisory Forum of the European Centre for Disease Prevention and Control (ECDC) ELPA is an official member representing non-governmental organisations – patients, of the Advisory [...]

ELPA Educational Training - DAY 4 The fourth and last day of the ELPA Educational Training took place on July 7, 2021. Three presentations from pharma companies were scheduled, and [...]

ELPA Educational Training - DAY 3 The third day of the ELPA Educational Training took place on June 30, 2021, and focused not only on presentations delivered by pharma companies' [...]

ELPA Educational Training - DAY 2 The second day of the ELPA Educational Training took place on June 23, 2021. After the first day that hosted presentations on Horizon 2020 [...]

ELPA ISO 9001:2015 Quality Certification On 29th June 2021, ELPA has achieved something extraordinary. ELPA is now the FIRST and the ONLY patient association in Europe with the official certification of [...]

Raising awareness on #FattyLiver among children ELPA is back to school. Between May and June 2021, ELPA was involved in the EU Project PaCo," Participation in Society through Classroom Activities [...]

ELPA Educational Training - DAY 1 ‘Therapies for acute decompensation of cirrhosis and ACLF, research needs and outlook.’ Under this title, ELPA presented, on June 9, 2021, its first Educational [...]

ELPA NASH Symposium The European Liver Patients Association (ELPA) organized a virtual NASH Symposium on June 10, 2021. This Symposium that is just the culmination of a series of actions [...]

Latest updates on COVID-19 vaccines ELPA, as part of the Patients' and Consumers' Working Party (PCWC) at the European Medicines Agency (EMA) would like to share with you EMA’s recent communications [...]

ELPA president Marko Korenjak-European Immunization Week European Immunization Week (EIW) Dear ELPA friends, The WHO European Region celebrates European Immunization Week (EIW) every year in April to raise awareness of the [...]

A new partnership in the fight to Hepatitis The European Patients’ Association (ELPA) is proud to announce the signature of a new Memorandum of Understanding (MoU) with The Coalition for [...]

COBALT-Study The Covid-19 pandemic has disproportionately affected liver patients - patients with chronic liver disease have around 5-times increased mortality from Covid-19 than individuals without liver disease. Therefore, the development [...]

This is custom heading element On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved [...]

SAVE THE DATE - International Viral Hepatitis Elimination Meeting, 3-4 December 2021 The International Viral Hepatitis Elimination Meeting (IVHEM) is a global forum for the exchange of practical experiences for [...]

'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of [...]

This is custom heading element 'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to [...]

‘Successful women in ELPA’s family,’ second act 'Successful women in ELPA's family,' second act   On March 8, 2021 – Women's Day, ELPA organized 'Successful women inELPA's family,' a talk [...]

Ivana Dragojevic - Women's Day I know you for a few years, but I don't know anything about you...how being an artist fits with the field of patients advocacy? Firstly [...]

‘Successful women in ELPA’s family,’ second act 'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk [...]

Joint Press Release-EUPATI-ELPA Joint-Press-Release-EUPATI-ELPA

An interview of Prof Ginès On March 9th 2021, Prof Ginès was invited onto a national radio programme to discuss Ascites, its causes and treatment.  This interview was for the [...]

'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of [...]

Elpa President Marko Korenjak-World Obesity Day

STATEMENT FOR WORD OBESITY DAY 2021 STATEMENT FOR WORD OBESITY DAY 2021 ELPA NASH WORKING GROUP-STATEMENT FOR WORLD OBESITY DAY 2021

We are proud to be part of PWCR #EMA European Medical Agency

1st Liver Cancer Patients' Summit - Key messages 1st Liver Cancer Patients' Summit - Key messages

VIDEOS OF LIVERSCREEN PROJECT IN CONSORTIUM LANGUAGES

This is custom heading element Profiling circulating microRNAs in patients with cirrhosis and acute-on-chronic liver failure

ELPA participated in Multi‐stakeholder Consensus on Core Outcomes for Decision Making About Nonalcoholic Steatohepatitis Treatment A multi‐stakeholder group from North America and Europe was invited to participate in the research [...]

The Israeli National Programme for Hepatitis C elimination, nothing without liver patients' organization "Patients have the right to know, and the system must let them know." With these words, Mr. [...]

ELPA - Liver Cancer Patients' Summit On February 4, 2021, World Cancer Day, ELPA organized the first Liver Cancer Patients' Summit. The goal was to raise awareness about liver cancer [...]

‘We should fight WITH the patients and not FOR the patients,’ goodbye Emilia Today ELPA has lost one of its most passionate friends, Emilia Rodrigues. She was the President of [...]

This is custom heading element ‘Do not be afraid, just believe in science’; these are the first words Sindee told ELPA. ELPA reached Ms. Sindee Weinbaum, representative of the ELPA [...]

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ELPA Stakeholders’ Meeting, Europe in 2021 – 2nd December 2020 ELPA Stakeholders’ Meeting, organized on 2nd December 2020, was the occasion to gather with some representatives of the most prominent [...]

ELPA Educational Training – DAY FIVE, 2nd December 2020 The fifth and last day of ELPA Educational Training on December 2, 2020, was composed of a mix of presentations from [...]

ELPA Educational Training – DAY FOUR, 25th November 2020 The fourth day of ELPA Educational Training on November 25, 2020, was once again entirely dedicated to presentations from Pharma Companies. [...]

ELPA Educational Training – DAY THREE, 18th November 2020 This ELPA Educational Training never ceases to surprise its attendees. The third day on November 18, 2020, was divided into two [...]

ELPA Educational Training – DAY TWO, 11th November 2020 Differently from day one, the second day of ELPA Educational Training on November 11, 2020, was entirely dedicated to presentations from [...]

About Alcohol abuse, the Awareness Week on Alcohol Related Harm is approaching The public health aspects of the problems associated with alcohol use and abuse are exploding. Around 12% of [...]

ELPA Educational Training – DAY ONE, 4th November 2020 The first day of ELPA Educational Training on November 4, 2020, started with ELPA President Marko Korenjak, stressing why that first [...]

New synergies for ELPA We are pleased to announce that ELPA signed a Memorandum of Understanding (MoU) with the European Kidney Patients' Federation (EKPF). This new MoU has as the [...]

ELPA Director elected Vice President of the “Alliance of Patient Organizations” of Macedonia ELPA would like to congratulate Milan Mishkovikj, ELPA Director, for having been elected Vice President of the [...]

ELPA and DiCE meeting on liver cancer. ‘Together we are EVEN stronger’ On October 21, 2020, on the occasion of Liver Cancer Awareness Month, the European Liver Patients’ Association joined [...]

PSC Day 2020 PSC Day 2020-Materials PSC MATERIALS FLIPBOOK PSC Day 2020 DOWNLOAD PDF MATERIALS - LINK PSC Materials [PDF]

New article on HCC published in Liver International by Prof. Shiha, ELPA Director ELPA is proud to announce the publication on Liver International of the article ‘GES: A validated simple [...]

Breaking News Nobel Prize for Medicine goes to #Hepatitis C discovery !

October Liver Cancer Awareness Month

This is custom heading element 1 What is PBC? Primary biliary cholangitis, or PBC, is a chronic and progressive hepatitis of long duration affecting mostly women between 35 and 60. [...]

ELPA President Marko Korenjak -World Patient Safety Day'20

Decision project The first online patient event of the DECISION project took virtually place on 31st August 2020. In the DECISION project, 21 European institutions join forces to tackle end-stage [...]

EASL Digital ILC meeting 2020 EASL Digital ILC meeting 2020 Let’s congratulate all together to EASL for their very first EASL Digital ILC meeting held on 27th-29th August 2020, as [...]

ELPA Educational training - Series of webinars, 17th June - 8th July 2020 The very first virtual ELPA Educational training started on 17th June 2020 with the greetings by ELPA [...]

ELPA educational training day 4 The last day of the ELPA Educational training on July 8, 2020 - exceptionally in a virtual form - was extremely dense with information, debates [...]

ELPA President invited to a high-level political meeting with German government’s representatives ELPA President Marko Korenjak was personally invited by Theresia Bauer, the Minister of Science, Research and Arts of [...]

ELPA joined the EASL Patient Groups Community ELPA is proud to announce that it became part of the EASL Patient Groups Community. ELPA’s successful application is just the latest step [...]

This is custom heading element On July 1, 2020 ELPA organized its third day of Educational training exceptionally in a virtual form. All the ELPA members’ representatives attending the meeting [...]

This is custom heading element The second day of the virtual ELPA Educational training was held on June 24, 2020. After a short introduction by ELPA President Marko Korenjak, Dr. [...]

This is custom heading element Washington DC, June 9, 2020 – The Forum for Collaborative Research announced the acceptance and online publication of the manuscript, “Standardization of Diet and Exercise in [...]

EU Booklet ELPA-Scientific-Booklet-2021-WEB PDF DOWNLOAD - LINK EU Booklet [PDF]

This is custom heading element ELPA has been chosen to be part to the EU HIV/AIDS, viral hepatitis and tuberculosis Civil Society Forum. The CSF Coordination Team finalised the application [...]

ELPA Educational Training – DAY ONE, 17th June 2020 The very first virtual ELPA Educational Training started today, 17th June with the greetings by ELPA President, Marko Korenjak. After a [...]

This is custom heading element ELPA is proud to be one of the partner who collaborated in the new European Vaccines Information Portal (EVIP). Developed by ECDC in close collaboration [...]

International Women's and Children's Health and Gender Group VIRTUAL Conference REGISTRATION FEES WAIVED! International Women's and Children's Health and Gender Group  VIRTUAL Conference Friday, June 19, 2020 10:00 AM to 4:30 PM [...]

ELPA in the Impact Board of the medical research project Decision ELPA president Marko_Korenjak has been elected as member of the Impact Board of the medical research project Decision. This [...]

Stronger Together against Liver Cancer! Digestive Cancers Europe (DiCE) and the European Liver Patients Association (ELPA) Start Official Partnership Today, Digestive Cancers Europe (DiCE) and the European Liver Patients Association [...]

This is custom heading element 15th Years Liver Patient Voice  2️⃣0️⃣0️⃣5️⃣-2️⃣0️⃣2️⃣0️⃣ Advocacy, Policy, Patients safety, Empowering and supporting ELPA members in #liverdiseases, awareness, prevention, Scientific community support..... 🇪🇺 EU Health [...]

15th Years Liver Patient Voice 2005-2020 15th Years Liver Patient Voice 2005-2020                                     [...]

COVID19 & Liver Disease  ELPA Statement #COVID19 & #Liverdisease President Marko Korenjak 🇺🇳WHO Europe 🇪🇺 EU Health Patients with advanced liver disease and recipients of liver transplants represent vulnerable groups [...]

Croatian Association for Liver Diseases In order to provide users of the Mobile InfoHep Center with a complete "link to care" service, Croatian Association for Liver Diseases "Hepatos" in cooperation [...]

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This is custom heading element What do people know about the liver DEF

This is custom heading element AASLD meeting Boston, 8-12 November 2019 From November 8th to November 12th, 2019 ELPA participated in the AASLD meeting in Boston. ELPA was represented by [...]

This is custom heading element LIVERHOPE h2020 Publication "Simvastatin and Rifaximin as new therapy for patients with decompensated cirrhosis" https://t.co/h9l18aBSyY

This is custom heading element ASSCAT (Associació Catalana de Pacients Hepàtics) and ELPA (European Liver Patient's Association) participated past 22nd-23rd November 2019 in the European Workshop on NASH in Clinical Practice in Barcelona. In session 6: [...]

This is custom heading element ELPA President @Marko_Korenjak live from @EUparliament. We wish you a Merry Christmas and successful New Year to all our members, stakeholders, partners and friends. @EU_Health [...]

This is custom heading element ELPA meeting in Barcelona started on 2nd December with the Stakeholders' meeting where ELPA Members had the possibility to hear amazing speakers presenting some key [...]

This is custom heading element On 3rd December, during the second day of ELPA educational training programme, ELPA was very honoured to have secured a visit at the Hospital Clinic [...]

This is custom heading element ELPA educational training started on 3rd December. ELPA members from Bosnia and Herzegovina, Cyprus, Croatia, Denmark, Finland, Georgia, Ireland, Israel, Macedonia, Norway, Portugal, Romania, Russia, [...]

This is custom heading element In Barcelona on 2nd December an ELPA Extraordinary General meeting was held. ELPA members needed to vote and adopt new ELPA's Statutes. Indeed, in accordance [...]

This is custom heading element Announcement of #EuroTestWeek'19 #EndHep in Europe!

This is custom heading element WHD 2019 report of Hepatos PDF DOWNLOAD - LINK Hepatos Activities [PDF]

This is custom heading element  WHD 2019 report of HepatosInternational NASH Day 2019 report of Hepatos DOWNLOADS WHD 2019 report of Hepatos [PDF] International NASH Day 2019 report of Hepatos [...]

This is custom heading element 1.       ISPOR Europe 2019, Location: Bella Center Copenhagen Center, Boulevard 5 DK-2300 Kobenhavn S, Copenhagen, Denmark, https://www.ispor.org/conferences-education/conferences/upcoming-conferences/ispor-europe-2019 2.       EMA Committee for Advanced Therapies (CAT), Location: Amsterdam, https://www.ema.europa.eu/en/events/committee-advanced-therapies-cat-06-08-november-2019 3.       One Health [...]

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This is custom heading element Liver cancer is a major health problem. Liver cancer is cancer that begins in the cells of your liver. Your liver is a football-sized organ that [...]

This is custom heading element ELPA was one of the biggest social media influencer on NAFLD Summit. Fatty liver problem will be one of the biggest issue in Europe in [...]

This is custom heading element ELPA Educational days were held in Split, Croatia where 22 ELPA members’ representatives came together to exchange opinions, follow up on ELPA’s work and progress [...]

This is custom heading element “Save the date! ELPA announces ELPA Pre-Summit on NAFLD – information for and from patients, patient experiences and views on NAFLD, as a back to [...]

This is custom heading element Kindly note, that ELPA is currently looking for an administrative help in Brussels’ office for 2 to 3 days per week. Brussels based and fluently [...]

This is custom heading element Patient Support materials Health & Wellness Guide_DigitalHE Guide DigitalNutrition Guide digitalAscites Guide DigitalHCC Guide DigitalVariceal Bleeding Guide Digital Documents Health Wellness Guide [PDF] HE Guide [...]

El gobierno catalán aprobó la semana pasada el Plan de Prevención y Control de la Hepatitis C en Cataluña, que contempla su eliminación como problema grave de salud pública el año 2030.

Gilead ha seleccionado siete proyectos de cuatro organizaciones por iniciativas que mejoran la calidad de vida de los pacientes en Cataluña, para becarlas en la I edición de su Community Grants & Donations Program, aunque las becas existen desde hace 10 años.

Gilead, compañía de la que María Río es directora en España, celebró ayer la VII edición de sus becas a la investigación médica.

Entre los días 27 y 29 de junio, Teresa Casanovas, presidenta de la Asociación Catalana de Pacientes Hepáticos (ASSCAT) participó en la reunió formativa de ELPA (European Liver Patients’ Association) en Split, Croacia.

Hace algo más de quince años la infección activa por el virus de la hepatitis C (VHC) en personas con VIH se situaba en el 55% y en la actualidad ese porcentaje se ha reducido en más de un 80% hasta caer al 2,5%.

Pretende actuar, escalonadamente y con un abordaje comunitario, en cinco ámbitos: alimentación, actividad física, sedentarismo, horas de sueño y otras conductas.

Un estudio internacional descubrió que sólo el 30% de los médicos que prescriben terapia de sustitución de opioides a personas que se inyectan drogas también prescriben AADs, a pesar de estar en una posición ideal para ofrecer pruebas y tratamiento para la hepatitis C.

La Agencia Española de Medicamentos y Productos Sanitarios (AEMPS) ha comunicado la producción de casos de reactivación del virus de la hepatitis B (VHB) en pacientes tratados con daratumumab.

Uganda ha sido la sede de la primera Cumbre Africana de la Hepatitis, celebrada entre el 18 y el 20 de junio.

Una vacuna experimental no resultó efectiva en la prevención de la infección crónica por el virus de la hepatitis C (VHC) en adultos, según los resultados de un ensayo clínico.

This is custom heading element Brussels, 10 January 2019 European Liver Patients' Association has held a second edition of its NAFLD - NASH meeting on 9th of January 2019. The [...]

This is custom heading element On 26 February 2019, the European Liver Patients’ Association (ELPA) held a policy roundtable entitled ‘The burden of Liver disease in Europe: The case of [...]

This is custom heading element Workshops ( team building) for ELPA members (who at the end shared their work experiences for 2018) At the workshop the members showed their practical [...]

This is custom heading element ELPA Symposium '19 “NAFLD and NASH from the patients’ perspective: what are the patients’ problems?” The Symposium take place on  the 11th of April 2019 [...]

This is custom heading element EASL '19 Welcome speech  ELPA president Marko_Korenjak "Only working together can bring results - patients and medical professional" #ILC2019 The International Liver Congress™ is the annual [...]

This is custom heading element For several years ELPA was part of eligible organizations to offer support, advise and participation at the consultations in European Medicine Agency. From this year, [...]

This is custom heading element Second international NASH day was celebrated in several cities in the world with organization of different events. In Brussels ELPA president Marko Korenjak and ELPA [...]

This is custom heading element Finnish NGO under the leadership of Sari Hogstrom organized an event on hepatitis elimination in Finnish Parlament and also an event about hepatitis micro elimination [...]

This is custom heading element ELPA Office Manager Open call: ELPA Office Manager ELPA IS CURRENTLY LOOKING FOR THE NEW ELPA OFFICE MANAGER WHO NEEDS TO BE BASED IN BRUSSELS [...]

This is custom heading element The first pilot for #SpringTestingWeek was conducted in May 2018 in partnership between European Liver Patients' Association, Integrate Joint Action and ETW with great success, [...]

This is custom heading element ELPA was invited by the European Association for the Study of the Liver (EASL) to participate at NAFLD SUMMIT 2018 in Geneva, from 20 to [...]

This is custom heading element Many liver patients suffer from stubborn prejudices. They are reluctant to tell colleagues, friends or employers about their condition. Besides the burden of being sick [...]

This is custom heading element Biographies-Speakers-web NASH-NAFLD-Summit-Agenda_DRAFT_2017-05-26 The first European Policy Summit on non-alcoholic fatty liver disease was organised by the European Liver Patients’ Association (ELPA) in partnership with the [...]

This is custom heading element Video for rising awarness about hepatitis C "Hepatitis C is a curable disease". There are approximately 700 thousands patients in Turkey. But all of them [...]

This is custom heading element Zagreb, February 19, 2016: Croatian Liver Society "Hepatos", WHO country office and MEP Biljana Borozan, the host of the meeting, have organized the high level [...]

This is custom heading element For many years, “Hetz” is helping liver patients and their families across Israel cope with the disease and seek the best possible treatment. This year, [...]

This is custom heading element Politicians, professionals and patients shared the need for the establishment and implementation of projects for national programs to fight the virus hepatitis B BULGARIA Today, [...]

This is custom heading element World Hepatitis Day, 28 July, 2014: Celebration in croatia As in the previous years, Croatian Association of treated and ill from Hepatitis (CATIH Hepatos), along [...]

This is custom heading element To commemorate World Hepatitis Day 2014 and increase public awareness on hepatitis B and C, Hepar Centar-Bitola held various activities which improved the understanding of [...]

This is custom heading element World Hepatitis Day 2014 in Poland The Star of Hope (Gwiazda Nadziei) Foundation was the organiser of World Hepatitis Day in Poland this year. The [...]

This is custom heading element The event was held 2 days prior to the global day (July 28th) on July 26th due to the Egyptian holiday July 28–30, 2014 (feast). [...]

This is custom heading element Under the slogan "Stop Hepatitis! Beware of A, B, C and D", the Association of Patients with Liver Diseases in Romania (APAH-RO) held a broad [...]

This is custom heading element On occassion of World Hepatitis Day 2014, President of the Republic of Croatia received ELPA president, mr.sc.Tatjana Reić, representatives from CATIH HEPATOS - Croatian Assocciation [...]

This is custom heading element Vienna, July 28th, 2014 Statistic data show that approximately 60,000 to 80,000 people in Austria suffer from Hepatitis C, a viral disease affecting the liver [...]

This is custom heading element Report from the press conference from July 15th, 2014 in Vienna From Prof. Dr. Peter Ferenci / Austria Treatment of chronic hepatitis C is a [...]

This is custom heading element ELPA member VIMOR is organizing an awareness and screening campaign covering the whole of Hungary. There will be 15 locations in 15 cities nationwide where [...]

This is custom heading element Big Yellow C’s at Thessaloniki The Hellenic Liver Patient Association "Prometheus" in the context of the main pillars of action, such as raising awareness and [...]

This is custom heading element On February 24, 2014, the Association for helping patients with chronic viral hepatitis - HRONOS organized a public event "Serbia with hepatitis in 2014" in [...]

This is custom heading element 28 July 2013 - World Hepatitis Day “This is hepatitis. Know it. Confront it.” This July 28 (World Hepatitis Day) was an opportunity for Sano-Hep [...]

This is custom heading element HEPTA-Organization of citizens, ”Association for health education, prevention and improved treatment” in collaboration with NGOs Option and Red Cross Ohrid, conducted a series of awareness [...]

This is custom heading element Flash mob: „I don’t see, I don’t hear, I don’t speak about Hepatitis” Find all the photos from the flash mob and the Guiness World [...]

This is custom heading element The Association of Liver Patients Care (ALPC in Dakhlya- Egypt) under the head of Dr. Gamal Shiha, organized a public awareness campaign to commemorate this [...]