Members unanimously approved updates of ELPA Statutes, Codes of Conduct, and Internal Rules On February 24, 2022, ELPA held an Extraordinary General Meeting to discuss ELPA Statutes, Codes of Conduct, and Internal Rules changes. The revision of the three documents was necessary to update them to the Belgian Law. ELPA members from Bosnia and Herzegovina, [...]

The first patient recruited in the IP-cure-B clinical trial The first patient has been recruited in the ANRS HB07 IP-cure-B clinical trial, sponsored by ANRS | Emerging Infectious Diseases and run by the Hospices Civils de Lyon - Hepatology Department, in Lyon, France, in the framework of the IP-cure-B project. The objective of the EU-funded [...]

ELPA President Marko Korenjak-World Cancer Day

#AlcoholFree Holidays & Happy Healthy Liver! AlcoholFree-drinks-Recipe-Booklet-2 PDF DOWNLOAD - LINK AlcoholFree drinks Recipe Booklet[PDF]

Launch Of White Paper - Liver Cancer: No patient left behind Launch Of White Paper - Liver Cancer: No patient left behind Liver_Cancer_Infographic_v3 Liver_Cancer_Short_Summary-V3 Liver_Cancer_White_paper-V3-short Liver_Cancer_White_paper-V3

Rare Liver Diseases Liver diseases are referred as rare when they affect a small percentage of the general population. Theycan be either genetic (inherited) or auto-immune.Following is a list of some of the more common rare liver diseases: PBC - Primary Biliary Cholangitis– is mainly found in women and onset is usually found in middle [...]

Launch of White Paper, Liver Cancer: No Patient Left Behind Jointly with DiCE Event description Hepatocellular Carcinoma (HCC) is the world’s 6th most common cancer and the 3rd most fatal. Every year, more than 98,000 European citizens are diagnosed with liver cancer, while around 89,000 die from the disease The purpose of the White Paper [...]

EASL / ELPA – Beating liver cancer in Europe - The Empowerment of prevention and early detection Event description Under the patronage of the Slovenian presidency of the Council of the European Union, the European Association for Study of the Liver (EASL) and the European Liver Patients’ Association (ELPA)  are organizing an advocacy event with [...]

ELPA is part of the EASL Policy and Public Health Committee ELPA is part of the EASL Policy and Public Health Committee Marko Korenjak, ELPA President, has been nominated as patients’ representative in the EASL Policy and Public Health Committee. The mission of the Committee is to provide EASL with expert scientific and policy guidance to enable [...]

ELPA is part of the Advisory Forum of the European Centre for Disease Prevention and Control (ECDC) ELPA is an official member representing non-governmental organisations – patients, of the Advisory Forum of the European Centre for Disease Prevention and Control (ECDC). ELPA President Marko Korenjak has been selected to be part of the Advisory Forum. [...]

ELPA Educational Training - DAY 4 The fourth and last day of the ELPA Educational Training took place on July 7, 2021. Three presentations from pharma companies were scheduled, and this was probably the most interactive day of the entire training. The morning started with a representative from Novo Nordisk, Dr. Ichhya Shrestha, MD - [...]

ELPA Educational Training - DAY 3 The third day of the ELPA Educational Training took place on June 30, 2021, and focused not only on presentations delivered by pharma companies' representatives. The meeting started with Ms. Mireia Alemany, who presented 'A Healthy Liver Will Always Deliver!', a comic to raise NAFLD awareness and promote healthy [...]

ELPA Educational Training - DAY 2 The second day of the ELPA Educational Training took place on June 23, 2021. After the first day that hosted presentations on Horizon 2020 medical, scientific projects, the second day focused on presentations delivered by pharma companies’ representatives. The meeting started with Dr. Salvador Augustin, MD from Boehringer Ingelheim, [...]

ELPA ISO 9001:2015 Quality Certification On 29th June 2021, ELPA has achieved something extraordinary. ELPA is now the FIRST and the ONLY patient association in Europe with the official certification of the Quality Management System in place. ELPA managed to build a quality system of its work, recognized by an external certification body, and got the [...]

Raising awareness on #FattyLiver among children ELPA is back to school. Between May and June 2021, ELPA was involved in the EU Project PaCo," Participation in Society through Classroom Activities and Cooperation." The project, financed in the framework of the Erasmus+ programme, involves 6 countries: Finland, Estonia, Spain, Hungary, Czech Republic, and Slovenia. It aims [...]

ELPA Educational Training - DAY 1 ‘Therapies for acute decompensation of cirrhosis and ACLF, research needs and outlook.’ Under this title, ELPA presented, on June 9, 2021, its first Educational Day dedicated to DECISION, MICROB-PREDICT, and A-TANGO, all projects ELPA is involved in. Three EU-funded research projects, MICROB-PREDICT, DECISION, and A-TANGO, joined forces to improve [...]

ELPA NASH Symposium The European Liver Patients Association (ELPA) organized a virtual NASH Symposium on June 10, 2021. This Symposium that is just the culmination of a series of actions promoted during the entire #FattyLiverMonth, besides the scientific approach of the disease by eminent speakers, also allowed NASH patients to share with ELPA their own [...]

Latest updates on COVID-19 vaccines ELPA, as part of the Patients' and Consumers' Working Party (PCWC) at the European Medicines Agency (EMA) would like to share with you EMA’s recent communications on COVID-19 vaccines: First COVID-19 vaccine approved for children aged 12 to 15 in EU Insufficient data on use of inhaled corticosteroids to treat COVID-19 [...]

ELPA president Marko Korenjak-European Immunization Week European Immunization Week (EIW) Dear ELPA friends, The WHO European Region celebrates European Immunization Week (EIW) every year in April to raise awareness of the importance of immunization in preventing diseases and protecting life, ensuring overall health protection. The COVID-19 pandemic has demonstrated the importance of immunization; COVID-19 vaccination is [...]

A new partnership in the fight to Hepatitis The European Patients’ Association (ELPA) is proud to announce the signature of a new Memorandum of Understanding (MoU) with The Coalition for Global Hepatitis Elimination (CGHE) - Task Force for Global Health. The MoU was signed by Mr. Marko Korenjak, President of ELPA, and Dr. John Ward, [...]

COBALT-Study The Covid-19 pandemic has disproportionately affected liver patients - patients with chronic liver disease have around 5-times increased mortality from Covid-19 than individuals without liver disease. Therefore, the development of vaccines is a welcome step, but we don't yet know if they are fully protected in liver patients. Early data from the US demonstrates [...]

This is custom heading element On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver disease, and patients' associations. The event was [...]

SAVE THE DATE - International Viral Hepatitis Elimination Meeting, 3-4 December 2021 The International Viral Hepatitis Elimination Meeting (IVHEM) is a global forum for the exchange of practical experiences for translating diagnostic and therapy advances of viral hepatitis into broad applications that accelerate progress towards the elimination of viral hepatitis as a public health threat [...]

'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver disease, and patients' associations. The [...]

This is custom heading element 'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver [...]

‘Successful women in ELPA’s family,’ second act 'Successful women in ELPA's family,' second act   On March 8, 2021 – Women's Day, ELPA organized 'Successful women inELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient [...]

Ivana Dragojevic - Women's Day I know you for a few years, but I don't know anything about you...how being an artist fits with the field of patients advocacy? Firstly I want to say Emilia will be dearly missed, she was passionate and happy about everything. Secondly, I want to say that I'm honored to [...]

‘Successful women in ELPA’s family,’ second act 'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient [...]

Joint Press Release-EUPATI-ELPA Joint-Press-Release-EUPATI-ELPA

An interview of Prof Ginès On March 9th 2021, Prof Ginès was invited onto a national radio programme to discuss Ascites, its causes and treatment.  This interview was for the general population and he discussed how liver diseases develop, progress and also the stigma related to cirrhosis and liver diseases. Check it out here https://mediavod-lvlt.rtve.es/resources/TE_SFEMSAL/mp3/6/3/1615300867336.mp3 [...]

'Successful women in ELPA's family,' second act On March 8, 2021 – Women's Day, ELPA organized 'Successful women in ELPA's family,' a talk dedicated to highlighting some success stories of women involved in ELPA. It was the occasion to listen to some inspirational stories inextricably linked to patient advocacy, liver disease, and patients' associations. The [...]

Elpa President Marko Korenjak-World Obesity Day

STATEMENT FOR WORD OBESITY DAY 2021 STATEMENT FOR WORD OBESITY DAY 2021 ELPA NASH WORKING GROUP-STATEMENT FOR WORLD OBESITY DAY 2021

We are proud to be part of PWCR #EMA European Medical Agency

1st Liver Cancer Patients' Summit - Key messages 1st Liver Cancer Patients' Summit - Key messages

VIDEOS OF LIVERSCREEN PROJECT IN CONSORTIUM LANGUAGES

This is custom heading element Profiling circulating microRNAs in patients with cirrhosis and acute-on-chronic liver failure

ELPA participated in Multi‐stakeholder Consensus on Core Outcomes for Decision Making About Nonalcoholic Steatohepatitis Treatment A multi‐stakeholder group from North America and Europe was invited to participate in the research with the Delfi method, and participants were categorized into patients/patient advocates, clinicians/researchers, U.S. payers, health technology assessors, industry representatives, or regulators. Participating patients and patient [...]

The Israeli National Programme for Hepatitis C elimination, nothing without liver patients' organization "Patients have the right to know, and the system must let them know." With these words, Mr. Burman started the conversation with ELPA. On the occasion of the launch of the Israeli National Programme for Hepatitis C elimination on February 17, 2021, [...]

ELPA - Liver Cancer Patients' Summit On February 4, 2021, World Cancer Day, ELPA organized the first Liver Cancer Patients' Summit. The goal was to raise awareness about liver cancer and multidisciplinary team, focusing on information for and from patients. After a video introduction where Dr. Tomislav Sokol, Member of the European Parliament - Group [...]

‘We should fight WITH the patients and not FOR the patients,’ goodbye Emilia Today ELPA has lost one of its most passionate friends, Emilia Rodrigues. She was the President of SOS HepatitesPortugal, ELPA member since 2005; she was also of ELPA Supervisory Committee and later an ELPA Advisor to the ELPA Board. In addition, Emilia [...]

This is custom heading element ‘Do not be afraid, just believe in science’; these are the first words Sindee told ELPA. ELPA reached Ms. Sindee Weinbaum, representative of the ELPA Member Hetz, the Israeli Association For The Health Of the Liver, and the ELPA Working Group leader on Rare Liver Diseases. She is the first [...]

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ELPA Stakeholders’ Meeting, Europe in 2021 – 2nd December 2020 ELPA Stakeholders’ Meeting, organized on 2nd December 2020, was the occasion to gather with some representatives of the most prominent associations in the field of liver diseases and patients’ advocacy. After a short introduction by ELPA President Marko Korenjak, the first speaker took the floor. [...]

ELPA Educational Training – DAY FIVE, 2nd December 2020 The fifth and last day of ELPA Educational Training on December 2, 2020, was composed of a mix of presentations from Pharma Companies and representatives from the medical-scientific field. The meeting started with ELPA President Marko Korenjak welcoming everybody. Representatives from AstraZeneca delivered a two-part presentation. [...]

ELPA Educational Training – DAY FOUR, 25th November 2020 The fourth day of ELPA Educational Training on November 25, 2020, was once again entirely dedicated to presentations from Pharma Companies. The meeting started with ELPA President Marko Korenjak welcoming everybody. Dr. McWherter, the representative of CymaBay, delivered the first presentation. He went deep into the [...]

ELPA Educational Training – DAY THREE, 18th November 2020 This ELPA Educational Training never ceases to surprise its attendees. The third day on November 18, 2020, was divided into two different parts. Before presentations from Pharma Companies, ELPA went sporty. Yianoulla Koulla and Veronika Všetičkova, ELPA working group on MAFLD and NASH, animated a session [...]

ELPA Educational Training – DAY TWO, 11th November 2020 Differently from day one, the second day of ELPA Educational Training on November 11, 2020, was entirely dedicated to presentations from Pharma Companies. The meeting started with ELPA President Marko Korenjak welcoming everybody. Dr. Elliot Norry, the representative of Adaptimmune, delivered the first presentation. He went [...]

About Alcohol abuse, the Awareness Week on Alcohol Related Harm is approaching The public health aspects of the problems associated with alcohol use and abuse are exploding. Around 12% of cancer cases worldwide are linked to alcohol consumption, and Europe is the world's heaviest drinking region. Alcohol abuse has devastated many lives and significantly harmed [...]

ELPA Educational Training – DAY ONE, 4th November 2020 The first day of ELPA Educational Training on November 4, 2020, started with ELPA President Marko Korenjak, stressing why that first day was entirely dedicated to members. He explained that ELPA’s activities’ structure is changing because the workgroups put together members that want to be active [...]

New synergies for ELPA We are pleased to announce that ELPA signed a Memorandum of Understanding (MoU) with the European Kidney Patients' Federation (EKPF). This new MoU has as the objective to formalize the cooperation between EKPF and ELPA to improve the well-being of patients and provide support to the patient population. The two associations [...]

ELPA Director elected Vice President of the “Alliance of Patient Organizations” of Macedonia ELPA would like to congratulate Milan Mishkovikj, ELPA Director, for having been elected Vice President of the “Alliance of Patient Organizations” of Macedonia. The “Alliance of Patient Organisations” is an organisation gathering patient organisations from FYROM – North Macedonia (Created in 2016). [...]

ELPA and DiCE meeting on liver cancer. ‘Together we are EVEN stronger’ On October 21, 2020, on the occasion of Liver Cancer Awareness Month, the European Liver Patients’ Association joined forces with Digestive Cancers Europe (DiCE) organizing, in the framework of DiCE Masterclass series, the webinar ‘Deep Dive into Liver Cancer’. This session delved into [...]

PSC Day 2020 PSC Day 2020-Materials PSC MATERIALS FLIPBOOK PSC Day 2020 DOWNLOAD PDF MATERIALS - LINK PSC Materials [PDF]

New article on HCC published in Liver International by Prof. Shiha, ELPA Director ELPA is proud to announce the publication on Liver International of the article ‘GES: A validated simple score to predict risk of HCC in patients with HCV-GT4 associated advanced liver fibrosis after oral antivirals’ written by Pof. Gamal Shiha, Director of the [...]

Breaking News Nobel Prize for Medicine goes to #Hepatitis C discovery !

October Liver Cancer Awareness Month

This is custom heading element 1 What is PBC? Primary biliary cholangitis, or PBC, is a chronic and progressive hepatitis of long duration affecting mostly women between 35 and 60. Men are less affected by PBC, probably not more than 1 out of 10 cases. However, their PBC prognosis tend to be poorer, compared to [...]

ELPA President Marko Korenjak -World Patient Safety Day'20

Decision project The first online patient event of the DECISION project took virtually place on 31st August 2020. In the DECISION project, 21 European institutions join forces to tackle end-stage liver disease and liver failure with a systems medicine approach. Over the next 5.5 years, the DECISION research consortium will analyse and integrate data from [...]

EASL Digital ILC meeting 2020 EASL Digital ILC meeting 2020 Let’s congratulate all together to EASL for their very first EASL Digital ILC meeting held on 27th-29th August 2020, as we very much appreciate the great effort made in these times of crisis. We are positive that we speak for all liver patients when we [...]

ELPA Educational training - Series of webinars, 17th June - 8th July 2020 The very first virtual ELPA Educational training started on 17th June 2020 with the greetings by ELPA President, Marko Korenjak. After a short tour of presentation by all the attendees the floor has been taken by Dr. Teresa Casanovas Taltavull. She broke [...]

ELPA educational training day 4 The last day of the ELPA Educational training on July 8, 2020 - exceptionally in a virtual form - was extremely dense with information, debates and exchanges among ELPA members, attendees and a remarkable variety of panellists. After an introduction by ELPA President Marko Korenjak, the floor was taken by [...]

ELPA President invited to a high-level political meeting with German government’s representatives ELPA President Marko Korenjak was personally invited by Theresia Bauer, the Minister of Science, Research and Arts of the State of Baden-Württemberg, Germany to the online-event: "No one size fits all: Artificial Intelligence as Key Technology for Personalised Medicine". On July 3, he, [...]

ELPA joined the EASL Patient Groups Community ELPA is proud to announce that it became part of the EASL Patient Groups Community. ELPA’s successful application is just the latest step of a long and fruitful collaboration started many years ago. However, it is also a fresh start to strengthen ELPA’s partnership with EASL even more [...]

This is custom heading element On July 1, 2020 ELPA organized its third day of Educational training exceptionally in a virtual form. All the ELPA members’ representatives attending the meeting had a short conversation together about the role of patients’ organizations and they exchanged updates about ELPA’s activities. After an introduction by ELPA President Marko [...]

This is custom heading element The second day of the virtual ELPA Educational training was held on June 24, 2020. After a short introduction by ELPA President Marko Korenjak, Dr. Teresa Casanovas Taltavull took the floor. During her presentation all the attendees had the possibility to listen to a detailed overview about optimising outcomes in [...]

This is custom heading element Washington DC, June 9, 2020 – The Forum for Collaborative Research announced the acceptance and online publication of the manuscript, “Standardization of Diet and Exercise in Clinical Trials of NAFLD-NASH: Recommendations from the Liver Forum” in Journal of Hepatology. “Lifestyle modification is the foundation of treatment recommendations for nonalcoholic fatty liver disease [...]

EU Booklet ELPA-Scientific-Booklet-2021-WEB PDF DOWNLOAD - LINK EU Booklet [PDF]

This is custom heading element ELPA has been chosen to be part to the EU HIV/AIDS, viral hepatitis and tuberculosis Civil Society Forum. The CSF Coordination Team finalised the application process to the new CSF and ELPA, along with 61 organisations plus two partner organisations, is officially one of the new member organisations. The first [...]

ELPA Educational Training – DAY ONE, 17th June 2020 The very first virtual ELPA Educational Training started today, 17th June with the greetings by ELPA President, Marko Korenjak. After a short tour of presentation by all the attendees the floor has been taken by Dr. Teresa Casanovas-Taltavull. She broke the ice presenting about the impact [...]

This is custom heading element ELPA is proud to be one of the partner who collaborated in the new European Vaccines Information Portal (EVIP). Developed by ECDC in close collaboration with EMA and the European Commission, EVIP is now publicly available. It was created following a Council Recommendation on ‘strengthened cooperation against vaccine-preventable diseases’. The [...]

International Women's and Children's Health and Gender Group VIRTUAL Conference REGISTRATION FEES WAIVED! International Women's and Children's Health and Gender Group  VIRTUAL Conference Friday, June 19, 2020 10:00 AM to 4:30 PM EDT Virtual via Zoom Register Here Online registration will close at 5:00 PM EDT June 17. You MUST be registered to receive the Zoom link [...]

ELPA in the Impact Board of the medical research project Decision ELPA president Marko_Korenjak has been elected as member of the Impact Board of the medical research project Decision. This project, of which ELPA is part, is focused on the end-stage chronic liver disease (cirrhosis) that is a major cause of morbidity and mortality, and [...]

Stronger Together against Liver Cancer! Digestive Cancers Europe (DiCE) and the European Liver Patients Association (ELPA) Start Official Partnership Today, Digestive Cancers Europe (DiCE) and the European Liver Patients Association (ELPA) signed a Memorandum of Understanding. The agreement brings about a formidable and active patient advocacy partnership that allows the two organisations to put their [...]

This is custom heading element 15th Years Liver Patient Voice  2️⃣0️⃣0️⃣5️⃣-2️⃣0️⃣2️⃣0️⃣ Advocacy, Policy, Patients safety, Empowering and supporting ELPA members in #liverdiseases, awareness, prevention, Scientific community support..... 🇪🇺 EU Health and 🇺🇳 WHO Europe level

15th Years Liver Patient Voice 2005-2020 15th Years Liver Patient Voice 2005-2020                                                       Advocacy, Policy, Patients safety, Empowering and supporting ELPA members in #liverdiseases, awareness, prevention, Scientific community support..... [...]

COVID19 & Liver Disease  ELPA Statement #COVID19 & #Liverdisease President Marko Korenjak 🇺🇳WHO Europe 🇪🇺 EU Health Patients with advanced liver disease and recipients of liver transplants represent vulnerable groups and are likely to be at an increased risk of infection and/or a severe course of COVID-19. In addition, the COVID-19 pandemic is placing an [...]

Croatian Association for Liver Diseases In order to provide users of the Mobile InfoHep Center with a complete "link to care" service, Croatian Association for Liver Diseases "Hepatos" in cooperation with the Public Health Institute of SDC,  is offering individuals, who need it, PCR testing for viral hepatitis so that infected people can be included [...]

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This is custom heading element AASLD meeting Boston, 8-12 November 2019 From November 8th to November 12th, 2019 ELPA participated in the AASLD meeting in Boston. ELPA was represented by President Marko Korenjak, Vice-President Julio Burman and Dr. Teresa Casanovas Coordinator of the ELPA Scientific Committee. The main purpose of the ELPA attendance at the [...]

This is custom heading element LIVERHOPE h2020 Publication "Simvastatin and Rifaximin as new therapy for patients with decompensated cirrhosis" https://t.co/h9l18aBSyY

This is custom heading element ASSCAT (Associació Catalana de Pacients Hepàtics) and ELPA (European Liver Patient's Association) participated past 22nd-23rd November 2019 in the European Workshop on NASH in Clinical Practice in Barcelona. In session 6: Future Treatment and Management options they were invited to share Patient Perspective on NASH by Ms Maite Pujol, ASSCAT associated and Dr Teresa Casanovas, ELPA Scientific Committee coordinator. [...]

This is custom heading element ELPA President @Marko_Korenjak live from @EUparliament. We wish you a Merry Christmas and successful New Year to all our members, stakeholders, partners and friends. @EU_Health @ECDC_EU @ECDC_HIVAIDS @SKyriakidesEU @anne_bucher @NASH_Education @rixwolff @EASLnews @hans_kluge @WHO_Europe @ACHIEVE_hep @VHPBorg @JVLazarus @phil_newsome7 @GlobalTaskforce @WHA #EuroTestWeek'19 #EndHep Europe #NOhep....

This is custom heading element ELPA meeting in Barcelona started on 2nd December with the Stakeholders' meeting where ELPA Members had the possibility to hear amazing speakers presenting some key priorities for the next year. Prof. Dr. Pere Ginès and his team from the Hospital Clínic Barcelona gave a speech about the prevalence and mortality [...]

This is custom heading element On 3rd December, during the second day of ELPA educational training programme, ELPA was very honoured to have secured a visit at the Hospital Clinic in Barcelona - Hepatology unit for all ELPA members. This liver unit is the biggest liver unit in Europe and one of the biggest in [...]

This is custom heading element ELPA educational training started on 3rd December. ELPA members from Bosnia and Herzegovina, Cyprus, Croatia, Denmark, Finland, Georgia, Ireland, Israel, Macedonia, Norway, Portugal, Romania, Russia, Spain, Serbia, Slovakia, Slovenia, Sweden, the UK, and Turkey had the possibility to hear speakers presenting some inspiring project and to debate amongst them. GILEAD [...]

This is custom heading element In Barcelona on 2nd December an ELPA Extraordinary General meeting was held. ELPA members needed to vote and adopt new ELPA's Statutes. Indeed, in accordance with the provisions of the new Belgian Code of Companies and Associations, ELPA Statutes has been reviewed also with the collaboration of Belgian professionals for [...]

This is custom heading element Announcement of #EuroTestWeek'19 #EndHep in Europe!

This is custom heading element WHD 2019 report of Hepatos PDF DOWNLOAD - LINK Hepatos Activities [PDF]

This is custom heading element  WHD 2019 report of HepatosInternational NASH Day 2019 report of Hepatos DOWNLOADS WHD 2019 report of Hepatos [PDF] International NASH Day 2019 report of Hepatos [PDF]

This is custom heading element 1.       ISPOR Europe 2019, Location: Bella Center Copenhagen Center, Boulevard 5 DK-2300 Kobenhavn S, Copenhagen, Denmark, https://www.ispor.org/conferences-education/conferences/upcoming-conferences/ispor-europe-2019 2.       EMA Committee for Advanced Therapies (CAT), Location: Amsterdam, https://www.ema.europa.eu/en/events/committee-advanced-therapies-cat-06-08-november-2019 3.       One Health Day campaign event, Location: Across the world, https://onehealthplatform.com/one-health-day 4.       NCRI Cancer Conference, Location: Scottish Event Campus, Glasgow, United Kingdom, https://conference.ncri.org.uk/ 5.       ISPOR Europe 2019, Location: Bella Center Copenhagen Center, [...]

This is custom heading element Naslov I am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. I am text block. Click edit button to change this text. Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut [...]

This is custom heading element Liver cancer is a major health problem. Liver cancer is cancer that begins in the cells of your liver. Your liver is a football-sized organ that sits in the upper right portion of your abdomen, beneath your diaphragm and above your stomach. Several types of cancer can form in the liver. [...]

This is custom heading element ELPA was one of the biggest social media influencer on NAFLD Summit. Fatty liver problem will be one of the biggest issue in Europe in the next decade. ELPA is very happy that also doctors are recognizing the importance of patient’ Pre-Summit events, such as this one. ELPA Pre-Summit on [...]

This is custom heading element ELPA Educational days were held in Split, Croatia where 22 ELPA members’ representatives came together to exchange opinions, follow up on ELPA’s work and progress and create a clear vision for the future. The first day was proposed by company Norgine, when we talked about the importance of social media [...]

This is custom heading element “Save the date! ELPA announces ELPA Pre-Summit on NAFLD – information for and from patients, patient experiences and views on NAFLD, as a back to back event to EASL NAFLD Summit on 26th September 2019 in Seville, Spain. As times are changing so does our approach. NAFLD is very much becoming [...]

This is custom heading element Kindly note, that ELPA is currently looking for an administrative help in Brussels’ office for 2 to 3 days per week. Brussels based and fluently speaking English and French languages is mandatory! Preferably we look for person that has experience in working in administration in Brussels. Job Duties: provide administrative [...]

This is custom heading element Patient Support materials Health & Wellness Guide_DigitalHE Guide DigitalNutrition Guide digitalAscites Guide DigitalHCC Guide DigitalVariceal Bleeding Guide Digital Documents Health Wellness Guide [PDF] HE Guide [PDF] Nutrition Guide [PDF] Ascites Guide [PDF] HCC Guide [PDF] Variceal Bleeding Guide [PDF] Latest News The first patient recruited in the IP-cure-B clinical trialThe [...]

El gobierno catalán aprobó la semana pasada el Plan de Prevención y Control de la Hepatitis C en Cataluña, que contempla su eliminación como problema grave de salud pública el año 2030.

Gilead ha seleccionado siete proyectos de cuatro organizaciones por iniciativas que mejoran la calidad de vida de los pacientes en Cataluña, para becarlas en la I edición de su Community Grants & Donations Program, aunque las becas existen desde hace 10 años.

Gilead, compañía de la que María Río es directora en España, celebró ayer la VII edición de sus becas a la investigación médica.

Entre los días 27 y 29 de junio, Teresa Casanovas, presidenta de la Asociación Catalana de Pacientes Hepáticos (ASSCAT) participó en la reunió formativa de ELPA (European Liver Patients’ Association) en Split, Croacia.

Hace algo más de quince años la infección activa por el virus de la hepatitis C (VHC) en personas con VIH se situaba en el 55% y en la actualidad ese porcentaje se ha reducido en más de un 80% hasta caer al 2,5%.

Pretende actuar, escalonadamente y con un abordaje comunitario, en cinco ámbitos: alimentación, actividad física, sedentarismo, horas de sueño y otras conductas.

Un estudio internacional descubrió que sólo el 30% de los médicos que prescriben terapia de sustitución de opioides a personas que se inyectan drogas también prescriben AADs, a pesar de estar en una posición ideal para ofrecer pruebas y tratamiento para la hepatitis C.

La Agencia Española de Medicamentos y Productos Sanitarios (AEMPS) ha comunicado la producción de casos de reactivación del virus de la hepatitis B (VHB) en pacientes tratados con daratumumab.

Uganda ha sido la sede de la primera Cumbre Africana de la Hepatitis, celebrada entre el 18 y el 20 de junio.

Una vacuna experimental no resultó efectiva en la prevención de la infección crónica por el virus de la hepatitis C (VHC) en adultos, según los resultados de un ensayo clínico.

This is custom heading element Brussels, 10 January 2019 European Liver Patients' Association has held a second edition of its NAFLD - NASH meeting on 9th of January 2019. The meeting was hosted by Carlos Moedas, European Commissioner for Science, Research and Innovation and was held in the European Commission in Brussels. Gathering experts form [...]

This is custom heading element On 26 February 2019, the European Liver Patients’ Association (ELPA) held a policy roundtable entitled ‘The burden of Liver disease in Europe: The case of Hepatic Encephalopathy’ in the European Parliament. The event, co-hosted by the Members of the European Parliament (MEPs) MEP Cristian-Silviu Bușoi (EPP) and MEP Tiemo Wölken [...]

This is custom heading element Workshops ( team building) for ELPA members (who at the end shared their work experiences for 2018) At the workshop the members showed their practical use of knowledge for the EU Projects in Liver Diseases and also shared their ideas for future implementations in the EU Projects . At the [...]

This is custom heading element ELPA Symposium '19 “NAFLD and NASH from the patients’ perspective: what are the patients’ problems?” The Symposium take place on  the 11th of April 2019 during EASL International Liver Congress in Vienna. Prevalence of NAFLD and NASH is increasing, cirrhosis and liver failure associated with NAFLD and NASH is increasingly [...]

This is custom heading element EASL '19 Welcome speech  ELPA president Marko_Korenjak "Only working together can bring results - patients and medical professional" #ILC2019 The International Liver Congress™ is the annual EASL'19 meeting, and the flagship event in EASL’s educational calendar. Every year in April, scientific and medical experts from a broad range of fields including [...]

This is custom heading element For several years ELPA was part of eligible organizations to offer support, advise and participation at the consultations in European Medicine Agency. From this year, we are also part of The Patients' and Consumers' Working Party at European Medicine Agency. The Patients' and Consumers' Working Party (PCWP) provides a platform [...]

This is custom heading element Second international NASH day was celebrated in several cities in the world with organization of different events. In Brussels ELPA president Marko Korenjak and ELPA vice president Julio Burman participated with short presentation in an event that was also broadcasted life on the internet. Their contribution was focused on many [...]

This is custom heading element Finnish NGO under the leadership of Sari Hogstrom organized an event on hepatitis elimination in Finnish Parlament and also an event about hepatitis micro elimination in the gropu of PWID's in Finnland. In Finnish Parlament ELPA president Marko Korenjak presented ELPA and also ways to ensure the patients voice in [...]

This is custom heading element ELPA Office Manager Open call: ELPA Office Manager ELPA IS CURRENTLY LOOKING FOR THE NEW ELPA OFFICE MANAGER WHO NEEDS TO BE BASED IN BRUSSELS AND BE FLUENT IN ENGLISH AND FRENCH LANGUAGE. OFFICE MANAGER JOB DUTIES: Maintains office services by organizing office operations and procedures Designs and implements office [...]

This is custom heading element The first pilot for #SpringTestingWeek was conducted in May 2018 in partnership between European Liver Patients' Association, Integrate Joint Action and ETW with great success, Spring Testing Week from 17-24 May 2019! Spring European Testing Week is an European campaign that encourages partner organisations—in community, health care and policy institutions-- [...]

This is custom heading element ELPA was invited by the European Association for the Study of the Liver (EASL) to participate at NAFLD SUMMIT 2018 in Geneva, from 20 to 22 September. The program was focused on scientific and industry partners in NAFLD and NASH. ELPA was able to present the patient view on the [...]

This is custom heading element Many liver patients suffer from stubborn prejudices. They are reluctant to tell colleagues, friends or employers about their condition. Besides the burden of being sick they also carry the burden of silence. Many liver patients are afraid to be called an alcoholic, while only a small percentage of liver diseases [...]

This is custom heading element Biographies-Speakers-web NASH-NAFLD-Summit-Agenda_DRAFT_2017-05-26 The first European Policy Summit on non-alcoholic fatty liver disease was organised by the European Liver Patients’ Association (ELPA) in partnership with the European Association for the Study of the Liver (EASL) and took place in the European Parliament the 31 of May 2017 hosted by Alojz Peterle, [...]

This is custom heading element Video for rising awarness about hepatitis C "Hepatitis C is a curable disease". There are approximately 700 thousands patients in Turkey. But all of them don't know that they are patient. 70 volunters have photo taken for this video: They are not patients... 11 doctors, 8 journalists, 8 economist, 3 [...]

This is custom heading element Zagreb, February 19, 2016: Croatian Liver Society "Hepatos", WHO country office and MEP Biljana Borozan, the host of the meeting, have organized the high level meeting "Hepatitis C: The Beginning of the End - Are we ready to think about the elimination of HCV in Croatia" at the Palace Hotel [...]

This is custom heading element For many years, “Hetz” is helping liver patients and their families across Israel cope with the disease and seek the best possible treatment. This year, Hetz has added a new focus to its association’s scope of activities. In addition to all the patient-support activities, the association is now very focused [...]

This is custom heading element Politicians, professionals and patients shared the need for the establishment and implementation of projects for national programs to fight the virus hepatitis B BULGARIA Today, March 5, 2015, at the initiative of the Health Care Committee at the 43rd National Assembly, Bulgarian Association for the Study of Liver Diseases and [...]

This is custom heading element World Hepatitis Day, 28 July, 2014: Celebration in croatia As in the previous years, Croatian Association of treated and ill from Hepatitis (CATIH Hepatos), along with Croatian Alliance of Hepatitis Patient Associations, organised activities on occasion of World Hepatitis Day (WHD) in order to raise awareness of hepatitis, known as [...]

This is custom heading element To commemorate World Hepatitis Day 2014 and increase public awareness on hepatitis B and C, Hepar Centar-Bitola held various activities which improved the understanding of the hepatitis-related issues and triggered public support in favour of actions to address the disease in an effective and systematic manner at the national level. [...]

This is custom heading element World Hepatitis Day 2014 in Poland The Star of Hope (Gwiazda Nadziei) Foundation was the organiser of World Hepatitis Day in Poland this year. The patrons of this event were the Polish Hepatitis Society (Polskie Towarzystwo Hepatologiczne) and The Hepatitis Coalition (Koalicja Hepatologiczna). The WHD event consisted of many parts; [...]

This is custom heading element The event was held 2 days prior to the global day (July 28th) on July 26th due to the Egyptian holiday July 28–30, 2014 (feast). It was held at ELRIAH patients waiting hall among patients, guests, kids and employees. The celebration involved liver patients attending Egyptian Liver Research Institute and [...]

This is custom heading element Under the slogan "Stop Hepatitis! Beware of A, B, C and D", the Association of Patients with Liver Diseases in Romania (APAH-RO) held a broad information campaign among the population on the occasion of World Hepatitis Day” Under the slogan "Stop Hepatitis! Beware of A, B, C and D", the [...]

This is custom heading element On occassion of World Hepatitis Day 2014, President of the Republic of Croatia received ELPA president, mr.sc.Tatjana Reić, representatives from CATIH HEPATOS - Croatian Assocciation of Treated and Ill from Hepatitis and Croatian Alliance of Hepatitis Patient Associations who gave the President insight into Croatian situation regarding viral hepatitis. This [...]

This is custom heading element Vienna, July 28th, 2014 Statistic data show that approximately 60,000 to 80,000 people in Austria suffer from Hepatitis C, a viral disease affecting the liver that is still largely treated as a taboo. In order to increase awareness for the disease and the situation of those affected, this morning, on [...]

This is custom heading element Report from the press conference from July 15th, 2014 in Vienna From Prof. Dr. Peter Ferenci / Austria Treatment of chronic hepatitis C is a success story of modern medicine. For the first time a chronic viral disease became curable, with a well tolerated oral treatment over just 12 weeks. [...]

This is custom heading element ELPA member VIMOR is organizing an awareness and screening campaign covering the whole of Hungary. There will be 15 locations in 15 cities nationwide where hepatologists and members of patient associations will help raise awareness. A number of information leaflets will be available for the general public including a questionnaire [...]

This is custom heading element Big Yellow C’s at Thessaloniki The Hellenic Liver Patient Association "Prometheus" in the context of the main pillars of action, such as raising awareness and knowledge of general and specific population, visited Thessaloniki in order to continue the awareness campaign from Athens, with the campaign named C-afora. From 26.04.2014 to [...]

This is custom heading element On February 24, 2014, the Association for helping patients with chronic viral hepatitis - HRONOS organized a public event "Serbia with hepatitis in 2014" in cooperation with the Clinical Center of Serbia, the Institute for Public Health "Dr Milan Jovanovic Batut" and the Office for civil right.

This is custom heading element 28 July 2013 - World Hepatitis Day “This is hepatitis. Know it. Confront it.” This July 28 (World Hepatitis Day) was an opportunity for Sano-Hep Romania, to report on the activities that the organization, with all its subsidiaries, has developed in support of people with hepatitis B and C and [...]

This is custom heading element HEPTA-Organization of citizens, ”Association for health education, prevention and improved treatment” in collaboration with NGOs Option and Red Cross Ohrid, conducted a series of awareness and educative activities on the occasion of World Hepatitis Day 2013. 1. Educational flyers were distributed to the general public along the beaches in Ohrid. [...]

This is custom heading element Flash mob: „I don’t see, I don’t hear, I don’t speak about Hepatitis” Find all the photos from the flash mob and the Guiness World Record attempt by clicking here! 28th of July 2013 - More than 250 people in Romania participated this Sunday on World Hepatitis Day between 12:00-14:00, [...]

This is custom heading element The Association of Liver Patients Care (ALPC in Dakhlya- Egypt) under the head of Dr. Gamal Shiha, organized a public awareness campaign to commemorate this year's World Hepatitis Day (July 28). The campaigning was organized in Dakhlya and was extensively covered by the local media. For the awareness campaigns, ALPC [...]